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You're listening to the nocturnous conversations.

I'm Emily Silverman.

What would you do if the medical system couldn't provide the answers you needed?

Or worse, the answer is your child needed.

Would you wait and hope for a solution? or would you take matters into your own hands? Across the world, patients and caregivers are stepping into the role of innovators,

hacking into their own medical devices, inventing new solutions, and building communities to solve problems that traditional health care

can't or won't. This quiet revolution is reshaping medicine, and at its heart is the belief

that patients are not just passive consumers of care. They're leaders, inventors, entrepreneurs,

connectors.

Today we're diving into this movement with Susanna Fox, the author of the book Revell Health,

a field guide to the patient-led revolution in medical care.

Susanna is a health and technology strategist and former chief technology officer for the U.S.

Department of Health and Human Services,

where she led an open data and innovation lab.

She has served as the entrepreneur in residence at the Robert Wood Johnson Foundation,

and she directed the health portfolio at the Pew Research Center's Internet Project.

Susanna has also spent decades uncovering stories of talented and motivated patients

who didn't wait around for scientists, doctors, researchers, or business to solve their problems,

...