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Nobody Told Me!

Dr. Kathy Hull: ...the wisdom of terminally ill children

Nobody Told Me!

Nobody Told Me!

Business, Entrepreneurship

4.2671 Ratings

🗓️ 24 November 2022

⏱️ 38 minutes

🧾️ Download transcript

Summary

On this episode, we talk with Dr. Kathy Hull, who is a true hero. She is the founder of the George Mark Children's House (http://georgemark.org), the first freestanding children's palliative care facility to open in the United States. The subject of death is taboo, especially with children, but as Dr. Hull says, "children don't stop dying just because we the adults can't comprehend the injustice of losing them".
 
Note: This episode was previously aired.
 
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Transcript

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0:00.0

I'm Jan Black. And I'm Laura Owens. And our guest today is Dr. Kathy Hull. We first heard about her when we watched her TED Talk stories from a home for terminally ill children.

0:25.6

She is the founder of the George Mark Children's House, the first freestanding children's paleative care facility in San Leandro, California.

0:29.2

It's the first of its kind to ever open in the United States.

0:32.3

The subject of death is taboo, especially with children.

0:35.7

But as Dr. Hull says, children don't stop dying just because

0:38.9

we the adults can't comprehend the injustice of losing them. Dr. Hull, welcome to the show.

0:44.4

Can you tell us a little bit about your background and what made you start the George Mark Children's

0:48.5

House? Well, as you mentioned, I'm a clinical psychologist with a specialization in health-related issues.

0:56.3

So for many years, I was actively on staff at Oakland Children's Hospital working on the oncology unit.

1:04.8

And it became so clear working with children who were critically ill that the hospital wasn't

1:14.8

necessarily the best place for them. For many children, it is. They're in with an acute

1:20.6

bout of something and the goal is to get them well and get them home. Yeah, something short term.

1:26.5

For children with chronic illnesses who may or may not be able to survive that illness,

1:33.5

getting them out of the hospital is often the best thing that can happen.

1:36.5

So that really was the motivation.

1:38.2

Let's see if we can't get kids out of the hospital and into a setting that feels so much more like home, user-friendly

1:47.9

pets, you know, family-style meals, lots of things that are possible in a small environment

1:56.6

like ours that aren't in a hospital.

1:59.1

So how did you actually then go about moving from the idea to the actual reality of the

2:06.3

George Mark House?

2:08.0

That's a great question.

2:11.0

It really was a vision.

...

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