The Caregiver's Journey

Is the Medicare GUIDE Program for you? Today Nancy and I are sharing insights from Amy Imes of Emory's Integrated Memory Care about the new Medicare Program GUIDE. We're going to help you understand what it is and how to know if you can leverage it. We're sharing three tips. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we are so excited to share this information with you. This is an awesome opportunity to learn about the US Medicare GUIDE Program. With big announcements happening on July 1, 2025, we're excited to give you an overview so you can understand how you might participate in the GUIDE program. Let us introduce you to Amy. Amy Imes is a gerontological nurse practitioner who is a trusted expert in geriatrics, demonstrating a deep understanding of the unique healthcare needs of the aging population. Throughout her career, Amy has played a pivotal role in building care models—that's important to the GUIDE program—and developing teams that yield superior outcomes. In addition to her clinical work, she is a member of the team at Emory's Integrated Memory Care, which is a nurse practitioner-led primary care practice for patients living with dementia. She's also the program lead for the Medicare GUIDE Program at Emory Healthcare. GUIDE stands for Guiding an Improved Dementia Experience. It is a US Medicare pilot program that aims to provide better support and resources for persons living with dementia and their caregivers. Which is awesome. You should know that it's a pilot program. Please let's all support it because we need to prove that this pilot program which focuses on helping dementia caregivers actually works so that this can become a standard part of Medicare and can also be expanded globally. It would be ideal for the US to prove it's worth so that we can help other countries take advantage of these kinds of support because they're watching and they're aware of it. This is a groundbreaking program that is being offered around the country. So definitely we want to show up and show out as people tend to say sometimes. As of today, July 1st, there are approximately 390 programs across the country that have been vetted by Medicare to provide this program, and so it is really going to have an impact for persons living with dementia. Full Show Notes https://thecaregiversjourney.org/39-is-the-medicare-guide-program-for-you-three-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned To find a guide program near you: Go to this CMS website page and put in your state and under models select ‘Guiding an Improved Dementia Experience (GUIDE) Model’ Then click ‘Display selected’ You can use the plus and minus signs in the upper right corner to zoom in closer to your area and find the program closest to you. There may be several who cover your zip code so explore options Emory Integrated Memory Care: https://www.emoryhealthcare.org/centers-programs/integrated-memory-care-clinic Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways What the Medicare GUIDE Program Offers One-on-one support and coaching by dementia prevention providers Care navigation through an often difficult and chaotic healthcare system Education and training resources for caregivers Respite care Tip 1: Understand Your Eligibility Tip 2: How to Find a GUIDE Program Near Me Tip 3: How to Integrate GUIDE with Your Existing Medical Team About Emory's Integrated Memory Care GUIDE Program For those in the Atlanta area, Emory's Integrated Memory Care is led by nurse practitioners who are all dementia specialists and geriatric specialists. They bring everything under one umbrella with geriatric psych, licensed social workers, and RNs on their team. This eliminates doctor hopping and multiple visits. Read More in This Blog here

Transcribed - Published: 1 July 2025

Do you wish you could get a good night’s sleep? We do too! We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we appreciate the insights Dr. Glenna Brewster, PhD, RN, FNP-BC, Assistant Professor at Nell Hodgson Woodruff School of Nursing at Emory University, shared for all of us about her sleep study titled SLEEPMATE, and how we can all create good sleep habits. Dr. Glenna Brewster’s background is impressive, and her passion for good sleep is inspiring! In addition to her responsibilities as a professor, she is a nurse scientist, family nurse practitioner, and she leads the Emory University Mind at Rest research team, which develops and tests practical, evidence-based programs to reduce sleep problems and improve health outcomes for people living with memory loss or dementia and their caregivers. Good sleep isn’t just for your care receiver, this is for you too! According to Dr. Brewster: Sleep problems, especially if you’re a caregiver or person living with cognitive impairment, are significant. You might have a hard time falling asleep, wake up multiple times during the night, or notice that as the disease progresses there is daytime sleepiness. Sleep disturbances are prevalent both in care partners or caregivers and people living with cognitive impairment. Dr. Brewster has developed the SLEEPMATE study for caregivers and people living with cognitive impairment and types of dementia. It’s a six-week virtual intervention where you participate together. The study examines whether the intervention is feasible, acceptable, and if it improves sleep outcomes. At the end of this blog post is the link you can use if you’re interested in participating in this virtual study. This topic is incredibly valuable for us as caregivers. We’ve learned the need for quality sleep — and what not having it is like. We’ve also learned that we’re often so focused on quality sleep for our care receiver, we don’t prioritize our own sleep as caregivers! One important take-away from Dr. Brewster for caregivers it’s so easy not to consider — or to lose sight of: Your quality of sleep is every bit as important — and sometimes even more — important than your care receiver’s. Full Show Notes here Additional Resources Mentioned Dr. Glenna Brewster, assistant professor, shares her innovative study designed to improve the sleep outcomes of persons living with preclinical and early-stage dementia and their caregivers. Brewster is also founder of the Mind at Rest research lab.For more information about joining this study, visit mindatrest.org/contact/.Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Practice Good Sleep Hygiene Tip 2: Limit Daytime Naps Tip 3: Make Your Bedroom Like a Cave Tip 4: Schedule Worry Time Earlier in the Day Tip 5: Keep Your Bedroom for the Three S's About the SLEEP-MATE Study Dr. Brewster's study is recruiting pairs. The person who is receiving the care doesn't have to be diagnosed with dementia, just have a complaint or an experience of cognitive changes. Caregivers or care partners—different people want to be called different things based on where in the dementia journey they are—both people participating, both having some type of sleep disturbance or sleep problems. That could be difficulty falling asleep, difficulty staying asleep (meaning that you fall asleep and then you wake up, and when you wake up, you have a hard time falling back asleep), or significant daytime sleepiness or some other type of impairment during the day. It's for people who are living within the contiguous US. Each of you gets an honorarium for participating as a thank you for your time and investment in participating in the study. If you have any questions or want to find out more about the study, please reach out at 404-712-9164 or you can check out their lab's website at www.mindatrest.org.

Transcribed - Published: 17 June 2025

"When it comes to caregiving, the assumption about being able to take what we've learned and just naturally grow is not always going to be true." How do you think you would feel if you were caregiving for a second or third person living with dementia? Would you feel more prepared because of your previous experience? If you answered "yes," you might be surprised by what research is revealing about experienced caregivers. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, both of us have been caregivers more than once, and we recently learned about enlightening research from Dr. Emily Mroz, a researcher at Emory University's School of Nursing who coined the phrase "experienced caregiver." Her research is shedding light on a common phenomenon that affects millions of families: providing dementia care for multiple loved ones throughout adulthood. Dr. Mroz is a tenure-track assistant professor and social behavioral scientist who studies how people think, feel, and act within their social and personal situations. With training in developmental psychology, gerontology, geriatrics, and public health, she uses her multidisciplinary perspective to develop resources and interventions that support people living with serious illness, family caregivers, and those who are bereaved. Through her research and interviews with caregivers, Dr. Mroz has identified crucial insights about experienced caregivers that challenge common assumptions and offer practical guidance for those stepping into the caregiving role again. Full Show Notes https://thecaregiversjourney.org/37-studying-experienced-caregivers-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Emily Mroz, assistant professor and social-behavioral scientist, discusses her research on improving how patients and caregivers navigate serious illnesses such as dementia, end-of-life care and bereavement. Link to study flyer here To join this study, visit survey.qualtrics.emory.edu/jfe/form/SV_cYfshxWcThSSV5s.Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Avoid Assumptions About Who Is Prepared to Be a Dementia Caregiver Tip 2: Assess How Prepared You Really Feel Tip 3: Don't Hesitate to Get Involved in Skills Training and Support Groups Tip 4: Share Your Stories with Grace, Not Judgment The Importance of Research for Experienced Caregivers Dr. Mroz's study is part of a growing recognition that experienced caregivers represent a significant population with unique needs and strengths. Her virtual research study involves participants completing surveys about their caregiving experiences and sharing their stories to help researchers understand the differences between new and experienced caregivers. Study details: Focuses on people currently in active caregiving roles, including those early in their journey with a second or third care recipientParticipants receive a $50 gift card honorariumSessions are conducted virtually and take about one to two hoursCan participate alongside other dementia caregiver research studiesResearch is crucial for developing resources specifically tailored to experienced caregivers Read More in This Blog here

Transcribed - Published: 10 June 2025

“An educated and confident family caregiver who knows what to do in their role is really the absolute best medicine for the care receiver.” Dr. Carolyn Clevenger Do you know extensive research specifically focused on dementia caregivers is being conducted? Are you aware of innovative studies designed to equip family caregivers with navigation skills? Now you will, and you’ll be learning about valuable opportunities to strengthen your caregiving journey. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we are continuously learning new ways to support our health and well-being, and that of our care receivers. We recently discovered the groundbreaking dementia caregiver research, the CANDO Study, Dr. Carolyn Clevenger, DNP, RN, GNP-BC, AGPCNP-BC, FAANP, FGSA, FAAN, Professor at the Emory University Nell Hodgson Woodruff School of Nursing is conducting. When most people think about dementia research, they focus on studies involving people living with dementia or pharmaceutical treatments. This crucial area of research focuses on supporting the family caregivers themselves. Dr. Clevenger is a professor and gerontological nurse practitioner who is nationally recognized as an education leader in advanced practice nursing and geriatrics. Carolyn founded, and directs, the comprehensive dementia care model called Integrated Memory Care (IMC), which provides memory and primary care in a single integrated approach for people living with dementia and their care partners. Full Show Notes https://thecaregiversjourney.org/36-learn-to-navigate-support-systems-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Dr. Carolyn Clevenger, a nationally recognized educational leader in advanced practice nursing, geriatrics and gerontology, shares her groundbreaking work on dementia family caregiver education programs that teach new caregivers how to transition into the role and navigate various support systems.For more information about joining this study, visit scholarblogs.emory.edu/CAN-DO/.Savvy Caregiver course: Available face-to-face or online (in-person version includes support group benefits)“Best Programs for Caregivers” website: A collaboration between the Benjamin Rose Institute on Aging and Family Care Alliance featuring only research-proven programs.Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Additional Resources Mentioned Takeaways Tip 1: Understand Different Levels of Care Early Home-Based CareCommunity-Based ProgramsResidential Care Options Key considerations: Each level has different eligibility requirements and payment structuresAvailability varies by state—some follow federal guidelines, others have state regulationsPeople often wait until they desperately need memory care but try to access assisted living instead, creating unnecessary stress Tip 2: Stay Ahead of Financial Challenges Protect your assets while maintaining oversightUnderstand the early warning signsWatch for judgment impairment issues Tip 3: Leverage Legal Support from Elder Law Experts What sets elder law attorneys apartSpecialized dementia expertiseLong-term benefits Tip 4: Take Evidence-Based Classes What makes evidence-based courses effectiveMeasurable outcomes The CAN-DO Study: Training Caregivers as Navigators Dr. Clevenger's current research project, CAN-DO (Caregiver As Navigator Developing Skills Online), trains family caregivers to navigate four critical systems: healthcare, financial, legal, and family systems. Course structure: Six-week online course following three families through different types of dementiaEach day presents real-life scenarios with appropriate responses and preventive measuresVideos from subject matter experts including elder law attorneys, investigators, estate planners, and healthcare providers

Transcribed - Published: 3 June 2025

Is your loved one in a memory care community, or are you considering moving them into one? Understanding how to build a collaborative relationship with the care team is crucial for ensuring the best outcomes for your loved one. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that creating a true partnership with care community staff can dramatically improve quality of care and reduce stress for everyone involved. We recently spoke with James Lee, CEO and co-founder of Bella Groves, an award-winning memory care community. With over 17 years of experience in senior living and memory care, James has developed valuable insights on how to transform what is often an adversarial relationship between family caregivers and professional caregivers into a collaborative partnership. Full Show Notes https://thecaregiversjourney.org/35-build-a-partnership-with-your-care-community-six-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess the Overall Fit When looking for a memory care community, many families focus on practical aspects like location, price, and amenities. While these factors are important, James suggests that philosophical alignment and rapport with the management team are even more crucial for long-term success. When evaluating potential communities, James recommends shifting your mindset from "us versus them" to "us collectively versus dementia." This perspective can transform the relationship from the beginning. Tip 2: Embrace the Community Aspect Moving your loved one from home to a community setting represents a fundamental shift in their care environment—from one-on-one care to being part of a group. Tip 3: Acknowledge Your Role Has Changed When your loved one moves into a care community, your role shifts from being the primary caregiver to being a care partner working alongside professional caregivers. Tip 4: Recognize That the Diagnosis Will Progress A critical aspect of the care partnership is understanding that your loved one's condition will continue to change over time. In fact, by the time someone moves into a memory care community, they're often in the steeper part of their dementia journey where changes happen more rapidly. Tip 5: Acknowledge Your Grief The dementia journey involves ongoing loss, a phenomenon Sue calls "drip grief." As your loved one's condition progresses, you experience new losses almost daily—abilities that disappear, memories that fade, personality changes that emerge. Tip 6: Engage with the Community Caregiving Team The families whose loved ones have the best quality of life tend to be those who actively engage with the care team. This engagement goes beyond basic communication to building genuine relationships with the people caring for your loved one. Building a True Partnership Creating a collaborative relationship with your loved one's care community team isn't just about being nice—it's about achieving the best possible outcomes for your loved one with dementia. By reframing the relationship from "us versus them" to "us collectively versus dementia," you can transform what is often an adversarial dynamic into a true partnership. As James explains, "You are your loved one's expert, we are dementia experts. And the two together give us the best chance to get this right." Read More in This Blog here

Transcribed - Published: 20 May 2025

Adding a new caregiver to your support team can be a challenging transition, whether they're coming into your home, assisting your loved one who lives alone, or joining the care team in a memory care community. This transition can be particularly difficult for those caring for loved ones with Alzheimer's or dementia, as changes in routine can cause confusion and resistance. If your loved one doesn't think they need help (and let's be honest, many don't), don't give up too quickly. Be patient and allow the process time to unfold. As one experienced caregiver shared, "He told the new caregiver for at least the first couple of weeks, every time she came, 'You need to go home.' She would just smile at him and say, 'Well, I'm not going home just yet.'"

Transcribed - Published: 6 May 2025

Are you prepared for others to take care of your loved one? Do you have a care plan in place? Having a comprehensive care plan is one of the most important tools a caregiver can create — not just for emergencies, but for everyday peace of mind. We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned the importance of creating a care plan for our loved one. We spoke with Amanda Lukoff, co-founder and CEO of Eleplan, about what a care plan is and how to create one that works for your unique situation. Amanda's journey to creating Eleplan was deeply personal. Her brother Liam, who has autism, is her "North Star" and the inspiration behind her career path, including going to law school for special education law. Through observing her parents' caregiving journey with Liam, Amanda recognized the need to capture all the knowledge that lived in her parents' heads so that others could provide care that truly honored who Liam is as a person. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned Episode 32: Navigating The Caregiver Hiring Process https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/Eleplan Website: https://www.eleplan.com/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Full Show Notes https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementias Takeaways Tip 1: Start with the Basics The first step in creating a care plan is to document the essential information that would allow someone to provide short-term care (even for just 30 minutes) while you step out. This includes: Emergency contactsMedications and dosagesHigh-level meal preferencesAllergiesRelevant medical conditions Tip 2: Outline Preferences and Daily Routines Beyond the basics, a good care plan should capture what makes your loved one unique—their preferences, personality traits, and daily routines. Your care plan should include: Likes and dislikesDaily schedule and routinesBedtime and morning ritualsBehavioral patternsEmotional triggers (both positive and negative) Tip 3: Document What to Do in an Emergency Crisis situations demand clear instructions. Your care plan should outline: What constitutes an emergency for your loved oneWhen to call 911 vs. other resourcesWho to contact and in what orderSpecial instructions for EMTs or ER staffLocation of important medical documents Tip 4: Collect Key Contacts and Documents Gathering important documents in one accessible location is critical for seamless care. This includes: Insurance cardsHealthcare directivesPower of Attorney documentsGuardianship formsMedical history and medication lists Tip 5: Keep Everything Accessible and Current A care plan is only effective if it's up-to-date and easily accessible. Amanda frames this with an important question: "Do I have a system that is as dynamic as the needs of my loved one and the ever-changing piles of documents and information?" Whether you're using a physical binder, shared digital documents, or a specialized platform like Eleplan, the key is having a system that makes updates easy and ensures the information is available whenever and wherever it's needed. Read More in This Blog

Transcribed - Published: 22 April 2025

When the time comes to bring professional caregiving support into your loved one’s life, the process can feel overwhelming. Whether you’re hiring a caregiver for home care or to complement care in a community setting, understanding how to find, evaluate, and select the right person is crucial for both your peace of mind and your loved one’s well being. We are Nancy Treaster and Sue Ryan, we’ve developed five essential tips for hiring a paid caregiver, based on real experiences and practical advice from caregiving experts. These insights will help you navigate this important transition with confidence and clarity. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/32-navigating-the-caregiver-hiring-process-five-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Episode 5: Home Alone https://thecaregiversjourney.com/leaving-your-care-receiver-alone-six-essential-tips-alzheimers-and-other-dementias/Episode 28: Home and Community Living Options https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/Episode 30: Elder Law Attorneys https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/Episode 33. How To Create a Care Plan: Five Essential Tips / Alzheimer’s and Other Dementias https://thecaregiversjourney.com/33-how-to-create-a-care-plan-five-essential-tips-alzheimers-and-other-dementiasSupport the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: Assess Your Loved One’s Needs Before you begin searching for a caregiver, it’s important to thoroughly understand what kind of support your loved one requires. This assessment will guide all your subsequent decisions about the type of caregiver, frequency of care, and specific qualifications needed. Consider these key areas when assessing needs: Activities of Daily Living (ADLs)Medical NeedsHousehold Management TasksSafety ConcernsTransportation and MobilityCompanionship Needs Tip 2: Determine the Type of Caregiver and Frequency Needed There are three main categories of paid caregivers, each with different training levels and capabilities: Companion CareCertified Nursing Assistant (CNA)Skilled Nursing Tip 3: Understand Your Financial Resources Review Your Financial Resources Savings and investment accountsLong-term care insurance policiesRegular income sourcesFamily financial contributions. Explore Available Benefits MedicareMedicaidVeterans Benefits Consider Family Contributions Tip 4: Decide Between Agency or Private Hire When you work with a caregiving agency: They Handle Administrative TasksThey Provide Backup CoverageThey Offer Training and SupervisionThey Assume Liability Private Hire Benefits It’s Usually Less ExpensiveYou Have Complete ControlThere’s Often More FlexibilityYou May Find Through Word-of-Mouth Private Hire Challenges You’re the EmployerNo Backup CoverageLimited Screening Resources Tip 5: Evaluate potential caregivers thoroughly Key Questions for Interviews Scheduling and AvailabilityQualifications and ExperienceApproach to CareCommunication Style Background Checks and References Set Clear Expectations Especially for private hires, establish from the beginning that the arrangement is on a trial basis. Include Your Loved One When Appropriate Next Steps: Care Plans and Integration Develop a written plan Develop an Integration Strategy Read More in This Blog here 

Transcribed - Published: 8 April 2025

We don't know what we don't know. But elder law attorneys do, and their expertise can be transformational for families facing aging-related challenges. Whether you're dealing with a recent diagnosis, planning for potential long-term care needs, or simply trying to prepare for the future, understanding how and when to work with an elder law attorney can make all the difference in your journey. In this episode, we'll explore four essential tips for working with elder law attorneys, based on insights from Beth Prather, a board-certified elder law attorney with 32 years of experience, and Courtney Lovejoy, an elder law attorney with a Master of Laws in elder law. Their expertise in Medicaid planning, VA benefits, estate planning, probate, trust administration, and guardianship offers valuable perspective for anyone navigating the complex legal landscape of aging and caregiving. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comDonate: https://give.cornerstone.cc/thecaregiversjourneyInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/they-know-what-we-dont-elder-law-attorneys-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned www.NAELA.org The National Academy of Elder Law Attorneys website has a searchable directory. "They have a really good search function where you can type in your zip code and find elder law attorneys within a certain radius," Courtney notes.State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (www.AFELA.org).Beth Prather: https://www.gskattorneys.com/attorneys/beth-a-prather/Courtney Lovejoy: https://www.gskattorneys.com/attorneys/courtney-van-emmerik-lovejoy/Support the nonprofit The Caregiver's Journey: https://give.cornerstone.cc/thecaregiversjourney Takeaways Tip 1: How to Find an Attorney Who Specializes in Elder Law Finding the right elder law attorney requires more than just a quick Google search. Here's how to identify professionals with genuine expertise in this specialized field: Look for Specialized Credentials Professional credentials can be helpful indicators of specialized knowledge in elder law: Board Certification: IMaster of Laws (LLM) in Elder Law: Ask the Right Questions How many Medicaid applications did they file last year?What percentage of their practice focuses on elder law?Do they handle guardianships, Medicaid planning, or VA benefits cases regularly? Use Reliable Resources to Find Specialists NAELA.org:State-specific organizations: For example, Florida has the Academy of Florida Elder Law Attorneys (AFELA.org).Personal referrals: Tip 2: Prioritize These Legal Documents and Planning Tools Once you've found an elder law attorney, certain planning tools should take priority: Comprehensive Durable Power of AttorneyConsider Long-Term Care InsuranceLimit or Avoid GiftingAvoid DIY Planning Common DIY mistakes include: Adding children to bank accounts or property titlesGiving away assets based on outdated or incorrect adviceTrying to "hide" assets from Medicaid Tip 3: Understand Medicaid and VA Benefits Options A significant part of elder law involves helping clients navigate government benefits for long-term care: Tip 4: Use This Time to Address Other Important Legal Matters Review Beneficiary DesignationsCreate an Asset InventoryConsider Account ConsolidationAddress Healthcare Decision DocumentsBe Cautious About Adding Others to Accounts or DeedsDiscuss End-of-Life Preferences

Transcribed - Published: 25 March 2025

When you’re grieving, the last thing you need to be doing is planning a service. Pre-planning allows you to make only two decisions when death occurs: what day and what time the service will be held. Everything else can be arranged in advance, giving you the space to honor your loved one while processing your grief. We are Sue Ryan and Nancy Treaster, and we recently spoke with Greg Cannon, who has more than 45 years of experience in the funeral profession, including as a funeral director. Greg shared his expertise on planning ahead for a loved one’s service, offering eight essential tips that can make all the difference during a difficult time. Rate, Subscribe, Share the Podcast and Share Your Tips on Social Media! Please click here to review, follow, subscribe to and share our podcast.   Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/finding-peace-in-preparation-end-of-life-service-preplanning-eight-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned End of Life Service Worksheet here Takeaways Tip 1: Choose a Funeral Home Select a funeral home that will meet your needs. This choice may be based on location, previous experience with them, or their reputation.  Tip 2: Decide on Burial or Cremation This fundamental decision shapes many subsequent choices.  If choosing burial, consider: Cemetery locationIf the person is married, reserving an adjoining space for the spouseWhether traditional burial or green burial options are preferred. For cremation, consider: Whether the cremation will happen before or after the service.What will be done with the cremated remains afterward. In both cases, you’ll need to decide what clothing the person will wear. Greg advises bringing a complete set of clothing, including undergarments and outerwear. Shoes are optional and often difficult to put on, but can be included if they’re meaningful. Tip 3: Decide on the Type of Service Funeral services have evolved beyond the traditional.  Traditional Service (for either burial or cremation) Memorial Service Green Burial Direct Cremation or Direct Burial Tip 4: Choose a Location The location for the service could be: A funeral homeA place of worshipA location meaningful to the deceased Tip 5: Prepare the Obituary Rather than writing the complete obituary under time pressure, prepare by: Compiling all necessary information ahead of timeCreating a comprehensive list of family members to includeSelecting a photo or photos to accompany the obituary. Tip 6: Create a Notification Tree Decide ahead of time: Who needs to be notified of the deathWho will notify whomCreate a “notification tree” so you’re not responsible for contacting everyone. Tip 7: Plan the Service Consider these elements and include your care receiver as much as possible: Officiant: Choose the clergy or person who will lead the serviceEulogies: Decide who will deliver them and provide guidanceMusic: Select meaningful songs or hymnsReadings: Choose scripture, poetry, or other readingsPersonal touches: Include memorabilia, photos, or items that represent the person’s life. Consider alternatives to traditional floral arrangements: Family quiltsMeaningful objects (like golf clubs for an avid golfer)Photos. Tip 8: Plan the Gatherings Consider various types of gatherings: Private family dinner before the serviceReception after the service for all attendeesInformal gathering at home with close family and friends.

Transcribed - Published: 11 March 2025

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that there are many misconceptions about hospice care. Today, we're joined by hospice nurses Nancy Heyerman and Brenda Kizzire to help clarify what hospice really is and when to consider it. Through their extensive experience, they've developed four essential tips to help you navigate this important transition in your caregiving journey. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/when-to-call-in-hospice-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned The Hospice Care Plan website here Frailty scale here The Hospice Care Plan booklet here The Hospice Care Plan YouTube channel here YouTube video - End of life for a person with dementia here Takeaways 1. Access Your Care Receiver Using the Frailty Scale One of the most important tools in determining when hospice might be appropriate is the frailty scale. This helps track changes that might indicate a need for hospice care. What to Monitor: - Weight loss patterns - Ability to feed themselves - Changes in mobility (e.g., walking distance decreasing) - Transition from walking to wheelchair - Changes in activities of daily living - Increased anxiety or behavioral changes - Decreased verbal communication - Mental status changes 2. Start Documenting This tip might seem obvious, but proper documentation can make a significant difference in getting hospice care approved. How to Document: - Keep a calendar with regular weight measurements - Note changes in mobility and daily activities - Use your phone to track behavioral changes - Record any falls or incidents - Track medication changes and effectiveness - Document observations from other family members and caregivers Important Note: Many primary care providers may not be familiar with the latest hospice criteria. Your documentation helps build a case for hospice evaluation and provides concrete evidence of decline. 3. Research Hospice Organizations  Don't wait until you're in crisis to start researching hospice organizations. Start your research early and be prepared. What to Research: - Available hospice organizations in your area - Their team structure and approach to care - Response time for evaluations and care - Experiences of other families - Specific services offered - Their experience with dementia patients Additional Tips: - Ask for recommendations from other caregivers - Read reviews and testimonials - Consider visiting their facilities if applicable - Ask about their approach to dementia care - Understand their after-hours support system 4. Request a Hospice Evaluation Don't be afraid to ask for a hospice evaluation, even if you're not sure your loved one qualifies. Steps to Get an Evaluation: 1. Ask your primary care provider for a hospice evaluation 2. If met with resistance, emphasize your goals of care 3. Frame it as establishing a baseline if needed 4. Remember that two physicians must agree - your primary provider and the hospice doctor 5. Be prepared to be a "squeaky wheel" if necessary The Hospice Care Plan: A Valuable Resource Nancy and Brenda have created "The Hospice Care Plan: A Path to Comfort," a comprehensive guide that helps families navigate hospice care. This resource includes: - Detailed symptom management guidelines - QR codes linking to instructional videos - Space for individualized care plans - Information about the hospice team - Practical tips for daily care Read More in This Blog here

Transcribed - Published: 25 February 2025

As caregivers for our loved ones with Alzheimer's and other types of dementia, we often face the challenging question: "Is it time to change my care receiver's living situation?" We are Nancy Treaster and Sue Ryan, and through our experiences, we've developed five essential tips to help you navigate this complex decision-making process. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/time-for-a-change-home-and-community-living-options-five-essential-tips-alzheimers-and-other-dementias/ Takeaways 1. Understand Your Financial Resources This foundational step requires a thorough assessment of both current and future financial resources. Professional Resources to Consult: - Financial advisors (especially those specializing in senior care) - Elder care attorneys - Government program specialists Income Sources to Consider: - Care receiver's savings - Pensions - Long-term care insurance - Public health insurance (Medicaid in the US) - Social Security disability benefits - Family contributions Expenses to Evaluate: - Home modifications - Safety adjustments - In-home caregiving costs - Day program fees - Potential lost income if reducing work hours - Care community costs 2. Research Care Options There are three main categories of care options to evaluate: Non-Residential Options: - Respite programs - Memory cafes - Day programs In-Home Options: - Professional caregiving services - Government programs (VA benefits, Medicare services) - Family caregiver arrangements Care Communities: - Memory care specific facilities - Communities with memory care units - Different care models and staffing levels - Waiting list considerations 3. Assess Home Safety This evaluation should include multiple perspectives: Medical Assessment: - Get an updated medical evaluation - Discuss current and future safety risks - Request occupational therapy assessment Key Safety Considerations: - Wandering risk - Cabinet and door safety - Mobility challenges - Fall prevention - Depth perception issues - Stairs and accessibility - Emergency services access 4. Evaluate Medical Needs Current and Future Medical Considerations: - Impact of multiple diagnoses - Care complexity - Required medical procedures - Medication management - Physical care requirements 5. Prioritize Wellbeing for Both Care Receiver and Caregiver This final tip focuses on quality of life considerations for everyone involved. Socialization Needs: - Care receiver's social preferences - Community engagement opportunities - Caregiver isolation prevention - Balance of stimulation and comfort Safety and Emotional Considerations: - Physical safety for both parties - Emotional wellbeing - Caregiver burnout prevention - Managing aggressive behaviors - Personal boundaries Making the Final Decision: - Consider all evaluation points - Involve family members - Maintain awareness of available options - Stay connected with potential care communities - Be prepared to act when needed

Transcribed - Published: 9 February 2025

When you’re caring for a family member with Alzheimer’s or other type of dementia, you’ve probably heard countless times: “Don’t forget to take care of yourself.” While well-intentioned, this advice can feel overwhelming when you’re already juggling multiple responsibilities! Through our conversation with Elizabeth Miller, we’ve learned that effective self-care is about more than just general advice — it’s about finding practical, sustainable ways to maintain your own wellbeing while caring for others. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes https://thecaregiversjourney.com/the-realities-of-caregiver-self-care-four-essential-tips-alzheimers-and-other-dementias/ Additional Resources Mentioned Happy Healthy Caregiver website here  20 for 2025 Funsheet here Self-Care at Sea cruise here Happy Healthy Caregiver podcast here Just for You daily journal here Takeaways Tip 1: Give Yourself Permission One of the biggest barriers to self-care is the guilt that comes with taking time for yourself. Many caregivers feel it's selfish to focus on their own needs when their care recipient is struggling. Tip 2: Think Broadly About Self-Care Self-care encompasses much more than just physical health. Elizabeth identifies eight key categories: - Practical self-care (like organizing your desk) - Emotional self-care (therapy, journaling) - Social self-care (connecting with others) - Spiritual self-care (following your spiritual path) - Intellectual self-care (learning new things) - Financial self-care (budgeting, planning) - Professional self-care (career development) - Physical self-care (exercise, nutrition) Tip 3: Prioritize and Schedule Self-Care The best self-care strategy is simply putting it on your calendar. Elizabeth recommends creating a "20 for 25" list—twenty things you want to do this year that bring you joy, energy, or peace of mind. These can range from small activities like learning a new game to bigger plans like taking a vacation. Tip 4: Give Yourself Credit Instead of focusing solely on to-do lists, create a "ta-da" list celebrating what you're already doing right. Remember that self-care includes basic activities you're already doing: - Getting sleep - Preparing meals - Basic hygiene - Managing finances - Taking breaks Read More in This Blog here

Transcribed - Published: 28 January 2025

When you’re caring for a family member with Alzheimer’s or another type of dementia, worries can keep you up at night — but they don’t help you. Through our conversation with Denise Brown, we’ve learned having a solid emergency plan helps calm your worries, reduce your fears, and provide you with peace of mind. Full Show Notes https://thecaregiversjourney.com/are-you-ready-for-an-emergency-get-a-plan-four-essential-tips-alzheimers-other-dementias/ Additional Resources Mentioned Slides used in episode here Caring Our Way community here Family Emergency Plan space on Caring Our Way here Schedule of free planning sessions with consultant here Takeaways Tip 1: Name Your Worry The first step in creating an emergency plan is identifying specific concerns that keep you up at night. Denise's Family Emergency Plan includes eight categories of common caregiver worries: - Delays - Health emergencies - Hospitalizations - Behavioral challenges - Transportation issues - Medication management - Care coordination - Communication needs Tip 2: Develop Your Plan Once you've identified your concerns, it's time to create actionable plans. Remember that plans can take many forms: - Written instructions - Maps or diagrams - Medication lists - Contact information - Behavior management strategies - Transportation arrangements Tip 3: Communicate Your Plan Effective communication ensures everyone involved understands their role. Consider multiple methods of sharing information: - Written letters or emails - Shared online documents - In-person meetings - Physical copies in accessible locations - Regular updates and reminders Tip 4: Update Your Plan Regularly Emergency plans should evolve as circumstances change. Watch for these common triggers that signal the need for updates: - Changes in your care recipient's condition - New diagnoses or medications - Shifts in your own availability - Family member changes - Service provider updates - Transitions to palliative or hospice care About Our Guest Expert Denise Brown founded the Caring Our Way community to support family caregivers. The community offers free resources, including: - Monthly planning sessions - Family Care Manager course - Downloadable planning templates - Online support spaces - Access to certified caregiving consultants You can find these resources at caringourway.com. Read More in This Blog here

Transcribed - Published: 14 January 2025

When a parent is diagnosed with Alzheimer’s or another type of dementia and the other parent begins their caregiving journey, the dynamic between the caregiving parent and child shifts dramatically. Through our experiences and conversations with families navigating this transition, we've developed six essential tips to help you support your parent as they take on the role of primary caregiver. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Full Show Notes Takeaways Tip 1: Insert Yourself into the Journey The first step is making your presence and support known while respecting your parent’s role as primary caregiver. Key points: Increase visit frequency or phone callsPosition yourself to observe daily dynamicsAvoid judgment of decisionsListen more than adviseShow support without taking over Tip 2: Monitor Caregiver Health Ensuring your caregiving parent maintains their own health is crucial for sustainable care. Key points: Ask specific questions that can’t be answered with “I’m fine”Monitor medical appointmentsDiscuss challenges they’re facingWatch for signs of stress or exhaustionEncourage preventive health care Tip 3: Provide Emotional Support Help your parent maintain connections and avoid isolation while caregiving. Key points: Listen actively to what’s said and unsaidValidate feelings before offering solutionsMaintain normal conversations beyond caregivingEncourage outside activities and interestsHelp research support resources Tip 4: Share the Load Even from a distance, there are many ways to help manage caregiving responsibilities. Key points: Handle digital tasks remotelyCoordinate with local friends and familyCreate support networksHelp with scheduling and planning Tip 5: Participate in Care Details Get involved in both practical and legal aspects of care management. Key points: Obtain necessary legal documents earlySecure medical power of attorneyAddress privacy laws and documentationArrange financial access if neededSupport decision-making processes Tip 6: Support Through Grief Grief occurs throughout the journey, not just at its end. Key points: Acknowledge “drip grief” throughout the journeyHelp maintain connections during caregivingSupport through the final transitionAssist with post-care legal mattersBe sure to process your own grief Special Considerations When creating support systems: Develop emergency plans earlyCreate shared care plansDocument important informationKeep contact lists updatedMaintain flexibility in arrangements About Our Guest Expert This episode featured Andrew Phipps from Empathy Unbound, who shared his personal experience supporting his father as he cared for Andrew’s mother with dementia. Andrew created Empathy Unbound to promote the idea that empathy is one of our greatest superpowers — one that we often don’t recognize or use enough. As Andrew explains, “The ability to take on the experience or position of another to help understand them is invaluable. Putting ourselves in someone else’s shoes helps us understand their situation in a way we couldn’t otherwise.” You can find the Empathy Unbound podcast wherever you get your podcasts. Read More in This Blog here

Transcribed - Published: 30 December 2024

"I discovered a growth on his gum that was only slightly smaller than a marble. That's when I learned dental care involves much more than just brushing teeth."   As caregivers for our loved ones with Alzheimer's and other types of dementia, we're continuously learning and adapting our care approaches. Through recent experiences, we've discovered important new aspects of dental care that we believe could help other caregivers on their journey. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned Other episodes mentioned Episode 15 here Large cell granuloma picture here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Oral swabs hereSuper soft toothbrush hereFresh Breath mouthwash here Full Show Notes here https://thecaregiversjourney.com/dental-care-update-three-new-tips-alzheimers-and-other-dementias/

Transcribed - Published: 17 December 2024

When your loved one experiences delusions or hallucinations for the first time, it can be frightening and overwhelming for everyone involved. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we've learned how to navigate these challenging moments. See Full Show Notes here Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

Transcribed - Published: 10 December 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we often struggle with adapting activities to their changing abilities. Through our experiences, and what we’ve learned from others on their caregiving journeys, Nancy Treaster and I developed three important tips to help you create meaningful engagement that honors who our care receivers are today. Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned Other The Caregiver’s Journey podcast mentioned Home Safety here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Large plastic rings child's toy that center screws into base hereAdult coloring book hereDementia friendly puzzle hereLavender lotion hereBead maze hereFidget blanket herePhoto giftsShutterfly hereMemory Cafe example here Takeaways From the moment of diagnosis, we need to shift our focus from what our care receivers used to do to what brings them joy now.  Tip 1: Adjust Our Expectations Our care receivers’ engagement and abilities change throughout their journey — even throughout each day.  Key points: Let go of ‘before’ comparisonsLet go of outcomesWatch for signs of enjoyment or frustrationPay attention to new interestsAdapt activities to current abilitiesAccept different ways of engaging Tip 2: Prioritize Their Safety As we introduce or adapt activities, safety must be a primary concern, considering both cognitive and physical abilities. Key points: Consider vision changes and depth perception challengesAdapt activities to safely maintain independenceProvide appropriate supervision and get creative in places to find itMake creative adjustments to familiar activitiesCreate support networks for safety Tip 3: Create Engaging Activities Create activities to reflect their personal history, career, hobbies and interests, while engaging their senses. Whenever possible, engage multiple senses for a deeper connection and engagement. Key points: Engage their senses:• Touch (e.g.: fidget blankets, textured items)• Sound (e.g.: familiar music, calming sounds)• Smell (e.g.: familiar scents, cooking aromas)• Sight (e.g.: colorful objects, family photos)• Movement (e.g.: seated dancing, simple exercises)Create social connections through:• Small group activities• Religious or spiritual practices• Memory cafes• Senior center programs• Family gatherings When planning activities: Observe body language for signs of engagement or distressHave backup calming activities ready if they get agitatedRemember that watching can be a form of participationConsider “drip grief” (see bottom of post for definition) — both yours and theirsBe flexible and creative in your approachAccept help from others who want to support you Read Full Blog here

Transcribed - Published: 3 December 2024

"If you give me a spa certificate but no gift of time to go with it, I'll probably never use it." As friends and family of Alzheimer’s and other dementia family caregivers, we want to give meaningful gifts that will actually be used and appreciated. Through our experiences and what we've learned from others on their caregiving journeys, we've developed five important categories of gifts that truly make a difference in a caregiver's life. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Begin your self-care journey guide hereScented soap Herbaria - here Sue’s favorite popcorn hereCare support coordinationMealtrain.com hereCaringbridge.com herePhoto giftsShutterfly here

Transcribed - Published: 26 November 2024

"I wish I had started monitoring my husband's medication sooner than I did." As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that medication management becomes increasingly challenging. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed four important tips to help you support your care receiver with medication management. See Full Show Notes here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electronic medication dispensing and monitoring device for caregiver here

Transcribed - Published: 19 November 2024

“We’ve both had ‘that’ trip — the last trip that you take when you decide we’re not traveling ever again with our care receiver. Or, as we like to say, it’s the trip after the last trip you should have taken!” We are Sue Ryan and Nancy Treaster. As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned travel decisions require careful consideration. Through our experiences, and what we’ve learned from support groups and others on their journeys, we’ve developed four important tips to help you decide whether you and your care receiver should stay home or go on what could be ‘that’ trip. See Full Show Notes here  Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Fidget blanket here Takeaways Tip 1: Pre-test Travel Readiness Key points: Test longer car rides (at least an hour round trip)Try interstate driving if that will be part of your journeyExperience crowds and noise if those will be presentTest unfamiliar environmentsPay attention to any existing signs of travel difficulty. Tip 2: Evaluate All Trip Components Key points: Assess sleeping arrangements and bathroom accessibilityConsider the need for quiet spaceEvaluate support options at the destinationThink about familiarity with locationsListen to your inner voice about the decision — is this the wisest choice? Tip 3: Plan Comprehensively Key points: Minimize advance information to avoid overwhelming your care receiver.Pack comfort items: Fidget blanketsFamiliar snacksFavorite music and headphonesPhoto booksFamiliar entertainment (DVDs, etc.) 3. Plan around normal routines: Meal timesSleep scheduleBest times of day for different amounts of activity 4. Prepare for emergencies: Take IDs and insurance cardsBring extra medicationsPack legal documentsConsider anti-anxiety medication optionsShare detailed itinerary with family membersHave your emergency contact information easy to find on your care receiver and in case something happens to you. Tip 4: Prepare Others Key points: Explain current abilities and challengesProvide conversation guidanceDemonstrate proper approach techniquesGive permission for others to opt out if they’re not comfortableShow grace toward those processing their own emotions Read More in This Blog here

Transcribed - Published: 11 November 2024

The moment you realize your loved one with dementia is missing, every second feels critical. While the natural instinct is to immediately begin searching, having a clear action plan can make the difference in finding them quickly and safely. Through insights from John Clark, a specialized dementia search and rescue expert in Georgia, we've compiled three essential tips for these frightening situations. Additional Resources Mentioned Georgia Emergency Search and Rescue John Clark USA 404-309-7386 [email protected] Professionally Trained in Urban Searches Alzheimers, Dementia, Children, Evidence Recovery, Major Disaster Search, NASAR, Disaster Assistance Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Takeaways Tip 1: Make the Right First Move Key points: Call emergency services immediately, before starting your own searchDon't wait to make the call while searching on your ownAsk if there are dementia-specialized search teams in your areaRemember that it's okay to search after making the call Tip 2: Provide Critical Information to Searchers Key preparation points: Keep current photos readily available: Essential information to share: Recent conversations and topics they've discussedTheir maiden name or previous namesNicknames family members useCommon walking routes or regular destinationsNearby water sources (pools, ponds, lakes)Places from their past they might seek outTheir current stage in their dementia journeyRecent behaviors or patternsCurrent medications Tip 3: Know What to Expect After They're Found Standard procedures: Medical evaluation is typicalTransportation to hospital via ambulance or police carAssessment for any injuries or exposure For More Read Full Blog here Building Better Local Resources Not every community has specialized dementia search and rescue teams, but there are ways to improve local capabilities: Steps to take: Contact your local Alzheimer's Association chapterAsk about existing specialized search resourcesInquire about training opportunities for local emergency servicesAdvocate for specialized training in your communityNetwork with other caregivers to share experiences and resources Note: If you're in Georgia, specialized dementia search and rescue services are available. Contact your local emergency services or Alzheimer's Association chapter for more information.

Transcribed - Published: 4 November 2024

The secret to successful holiday celebrations with our dementia care receivers isn't perfect decorations or parties—it's having a peaceful retreat space ready for them when needed. As caregivers navigating the holiday season with loved ones who have Alzheimer's and other types of dementia, we've learned that intentional planning makes all the difference. The holiday season brings additional activities, decorations, and visitors that can disrupt the routines so vital to our care receivers' well-being. Success requires careful observation, thoughtful preparation, and gradual adaptation of celebrations. Through our experiences, what we've learned from support groups, and from others on their journeys, we've developed five essential tips to help create positive holiday experiences while maintaining the calm and familiar environment your care receiver needs. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Takeaways Tip 1: Preserve Daily Routines The holidays and routines might share the same number of letters, but that's where their similarities end. While the season pulls us toward special events and gathering, we must remember that routines are the cornerstone of stability for our care receivers. These familiar patterns aren't just habits—they're vital anchors that help our loved ones navigate their days with confidence and security. Tip 2: Be Prepared With a Calm Retreat Space In the midst of holiday celebrations, having a sanctuary becomes essential. Think of this space as your loved one's personal haven—a place where the overwhelming stimuli of holiday gatherings can't reach. Just as we all need a quiet moment sometimes, our care receivers often require a calm, familiar space where they can retreat and regroup when festivities become too much. Tip 3: Set Expectations With Visitors While Also Acknowledging Their Feelings The holiday season often brings an increase in visitors, each carrying their own expectations and memories of past celebrations. While these visits can be precious opportunities for connection, they require careful management to ensure everyone's comfort—especially our care receivers. Understanding and communicating about the current reality of your loved one's condition helps create more meaningful interactions and minimize uncomfortable situations. Tip 4: Teach Visitors How To Visit Creating successful visits is about helping others understand how to connect with your care receiver in their current reality. As their ability to process information changes, the ways others can best interact with them evolves too.  Tip 5: Introduce Changes Gradually The magic of holiday decorations and traditions can quickly become overwhelming for someone with dementia. What once brought joy might now cause confusion or distress. This doesn't mean we must abandon all holiday cheer—rather, we need to be thoughtful about how we introduce these changes to our environment. Think of it as slowly turning up the dimmer switch rather than flipping on bright lights all at once.

Transcribed - Published: 29 October 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned eating and drinking become significant challenges. Through our experiences, and what we've learned from support groups and others on their journeys, we've developed seven important tips to help you and your care receiver navigate dining. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned Episode 13 - Incontinence Overnight here  These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Bibs here Spork here Lowbowls hereGrippy placemats here Other great caregiver dining aid products here Takeaways Tip 1: Observe Their Natural Eating Habits Observe and record how they naturally eat and drink (e.g., time of day, order, how they cut their food, which hand they use for each utensil).Continuously observe, adjust, and share with others who are helping your care receiver with their eating and drinking.  Tip 2: Utilize Pre-made Meals and Visual Cues Leave pre-made meals in easily accessible places (e.g., eye-level in the refrigerator).Use visual cues like notes on the refrigerator or preset table settings with a note where the plate will go that tells your care receiver where the meal is.Check to make sure they have actually eaten their food and finished what they had to drink so you know if they’re able to understand what to do. Tip 3: Pre-cut Food, Adjust Portions, Observe How They’re Able to Eat and Drink Pre-cut food into manageable pieces.Consider converting sandwiches and other foods into finger foods.Be aware of changes in hand stability, grip strength, vision, and coordination.Some people with dementia diagnoses lose regulation with their appetite. It’s important for us to observe how they’re eating and the portions they’re eating to make sure they’re getting the proper amount of food. Introduce non-breakable drinkware, consider tops or adult sippy cups.  Tip 4: Prepare for Messier Eating Consider using regular bibs or large disposable bibs Place a towel on the chair to catch spills.Keep a basket of cleaning supplies (e.g. paper towels, hand wipes, table wipes) handy for quick clean-ups. Tip 5: Simplify Eating Utensils and Tableware Low bowls with a slight rim make it easier to push food onto utensilsSporks combine the functions of spoons and forks, so one utensil can be used.Grippy placemats keep plates from sliding. Tip 6: Monitor and Adjust Nutrition Watch for unexplained weight loss or gain.Consult with doctors if you notice sudden changes.If you move your care receiver to a memory care community, develop nutrition plans and weight monitoring processes and stay actively engaged with them.  Tip 7: Gradually Take Over Feeding and Hydration Position yourself closer to them at mealtimes to make assistance easier.What begins as prompting them to eat or drink and gradually increases to handing them their utensils and/or putting food on their utensils, showing them their drinking glass becomes modifying their drinking glass to make it easier for them to use, to eventually fully feeding them and controlling their beverages. Read More in This Blog here See full show notes here

Transcribed - Published: 22 October 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned that shaving, trimming nails, brushing teeth and trimming hair - what we’re calling personal care - can become challenging. These challenges often arise around the same time as bathing and dressing difficulties. How we provide support for our loved one will vary based on whether they stay at home during their journey or move into a care community. Not surprisingly, personal care is an area where many tips can be provided!  Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four initial areas of tips to help you and your care receiver with their personal care. Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected] Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Electric razorFor men hereFor women hereOral swabs hereSuper soft toothbrush hereFresh Breath mouthwash hereElectric hair trimmers here Full Show Notes https://thecaregiversjourney.com/personal-care-four-essential-tips-alzheimers-and-other-dementias/ Takeaways Understanding Personal Care Challenges in Dementia Care Tip 1: Mastering the Art of Shaving Transition to an electric razor as early as possible.  Begin your support by prompting and supervising, gradually inserting yourself into the process.Try shaving when your care receiver is calm, possibly after meals or during naps.Aim to shave men's facial hair at least every other day to prevent discomfort from longer hair. For women, transition to electric razors for safety. Women also tend to become comfortable with letting their body hair grow.As early in their diagnosis as possible, get a thorough dental examination. If there is any dental work that's important to be completed, do it while they still understand and can participate.Consider transitioning to a dentist specializing in disabilities.If possible increase dental visits to every three months.Start by reminding your care receiver and supervising their tooth brushing.Gradually take over the process - for example, begin by handing them their toothbrush, transition to handing them their toothbrush with toothpaste on it, then transition to beginning to brush their teeth.Use a soft-bristled toothbrush and less toothpaste to prevent swallowing.Consider using disposable oral swabs with mouthwash for additional cleaning. Tip 4: Hair Care and Trimming Take photos of the hair style your loved one has.If they color their hair, talk about keeping it colored or letting it become their natural color.There are hair stylists who will come to your home instead of you having to go into a salon. Consider transitioning to easier-to-manage hairstyles.Learn basic haircutting techniques or ask their stylist to teach you.For women, longer hair in a soft bun might be easier than short styles.Personal care trimmers are very helpful for both men and women for eyebrows, hair in the ears and nose. Read More in This Blog here

Transcribed - Published: 15 October 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned overnight incontinence is one of the most challenging aspects of the journey. It's not a topic often discussed, yet it's a reality for us to face with compassion, dignity, and preparation. We are Nancy Treaster and Sue Ryan. Through our experiences, we've developed four important tips to help you navigate overnight incontinence in your caregiving journey. Takeaways Overnight incontinence can be particularly challenging because it affects the sleep of both the care receiver and the caregiver. It often requires a balance between managing a mess and getting necessary rest. This stage can be an inflection point in the caregiving journey, potentially requiring additional help or considering moving your loved one into a care community. Here are four tips to help you navigate this challenging phase:   Tip 1: Transition to Nighttime and ultimately Disposable Incontinence Underwear   It's important to ensure your care receiver has appropriate protection overnight.   Tip 2: Protect the Mattress   Accidents will happen, so it's important to protect the bed.   Tip 3: Make the Bathroom Easy to Find   Help your care receiver locate the bathroom easily if they wake up during the night. We cover this in detail in podcast episode 9 Preparing for Incontinence.   Tip 4: Keep Your Care Receiver Comfortable Overnight   As incontinence progresses, it becomes important to take additional steps to ensure comfort. Navigating overnight incontinence in Alzheimer's and dementia care is challenging in the beginning as you’re both adapting. With patience, curiosity, compassion, preparation and the right mindset, it can be manageable.   Key points:   Transition to appropriate nighttime protection.Protect the mattress and be prepared for frequent sheet changes.Make the bathroom easy to find.Keep your care receiver as comfortable as possible overnight.Consider a mid-night change if possible.Maintain hydration but manage fluid intake timing. Blog here Additional Resources Mentioned Episode 4 - Wandering hereEpisode 10 - Incontinence Begins hereChild proof door knob cover or double deadbolt locks for external doorsChild proof door knob covers hereExtra tall pet gate from (40” to 70”) - 57”  helpDisposable incontinence underwearFor women hereFor men herePadsMattress pads34”x36” here72”X36” hereDisposable incontinence pads hereBrown large pet pee pads hereMattress bag herePeelaways hereCameras or baby monitor for the bedroom and bathroomBaby monitors - some come with motion alarms hereMotion alarm hereCameras - If your care receiver is still staying home alone, consider one with an intercomRing indoor with two-way talk hereWashable incontinence underwear For womenColors hereCream hereFor men Briefs hereBoxer briefs hereDisposable incontinence underwearFor women hereFor men hereDisposable incontinence underwear guards For men hereFor women hereAdult washcloths/wipes hereDisposable incontinence pads hereRound tipped scissors here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected]

Transcribed - Published: 8 October 2024

As caregivers for our loved ones with Alzheimer's and other types of dementia, we've learned bathing and dressing can become significant challenges. These activities are often early signs of transitioning from the initial phase of the caregiving journey where we’re simply prompting and helping them, to what we call the "messy middle”, when we begin asserting more control. We are Nancy Treaster and Sue Ryan. Through our experiences, what we've learned from support groups, and others on their journeys, we've developed four important tips to help you navigate bathing and dressing for your care receiver. Takeaways Here are four tips to help you navigate this phase: Tip 1: Simplify Instructions As the journey progresses, your care receiver may begin struggling with multi-step instructions. Start giving one instruction at a time. Break down their tasks into smaller steps. Consider adaptive clothing options. Tip 2: Gradually Insert Yourself into the Process As their challenges increase, it’s time to become more involved in their bathing and dressing process. From early in their journey, if you haven’t already learned their natural bathing and dressing routines, observe and note them.  Prompt or assist them in their routine order. Set up the bathroom to make it as easy for them as possible to bathe (if you normally keep everything put away, put the items out where they can see everything they’ll need),  Put their clothing out. (Tip: When I began putting my husband’s clothing out, I began putting my clothing out as well, explaining to him I had heard this was a great tip to simplify dressing, and wanted to try it myself.) This helps maintain their dignity.  Prepare everything needed for their bathing and dressing in advance. Consider marking the preferred shower temperature on the faucet. Tip 3: Transition to Sponge Baths At some point, traditional showers or baths may become too challenging or stressful. Use non-rinse bathing wipes for body cleansing. Try non-rinse shampoo caps for hair washing. For facial cleansing, consider products like Burt's Bees Micellar Water. Maintain a regular schedule of cleaning, even if it's not a full bath every day. Tip 4: Assist with the Dressing Process As with bathing, dressing will require more assistance over time. - Transition to adaptive clothing when appropriate, especially if incontinence becomes an issue. - Ensure safety during the dressing process (e.g., have them seated when putting on socks). - Be attentive to their comfort, including temperature preferences. - Encourage participation in the process as much as possible. Read More in This Blog here Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Adaptive clothingShorts snap up herePants snap up hereVery nice adaptive clothing here Disposable incontinence underwearFor women hereFor men hereAdult washcloths/wipes hereNo-rinse bathing wipes hereNo-rinse shampoo caps here Rate, Subscribe and Share Your Tips on Social Media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected]

Transcribed - Published: 8 October 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned that full incontinence is an inevitable part of our journey. It’s a topic not often discussed, yet it’s a reality for us to navigate with compassion, dignity, and preparation — for both us and our care receiver. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed 2 valuable tips to help you navigate bowel and bedbound incontinence in your caregiving journey. Watch Bowel and Bedbound Incontinence: Two Essential Topics / Alzheimer’s and Other Dementias https://youtu.be/PD4zOctyfPw Takeaways Read More in This Blog here Additional Resources Mentioned Episode 10 - Incontinence Begins hereEpisode 11 - Cleaning Your Care Receiver hereChanging a bedbound care receiver YouTube video here Changing a Depend with a bowel movement hereDisposable incontinence underwearFor women hereFor men hereWheels for bedBed with railsWedge pillowAdaptive clothingShorts snap up herePants snap up hereVery nice adaptive clothing here Non-rinse bathing wipes hereAdult washcloths/wipes hereDisposable incontinence pads hereRound tipped scissors hereScented small trash can liner hereAdult incontinence can here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected]

Transcribed - Published: 1 October 2024

As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned managing incontinence is one of the most challenging aspects of our journey. It’s a topic where having detailed information is vital to our adjusting to this part of our journey mentally, physically, and emotionally. We are Nancy Treaster and Sue Ryan. Through our experiences, and insights we’ve learned from others in support groups, we’ve developed three indispensable tips to help you navigate the important component of incontinence care with your care receiver — cleaning them Takeaways here Additional Resources Mentioned Episode 10 - Incontinence Begins hereEpisode 12 - Bedbound and Bowel Incontinence hereEpisode 13 - Incontinence Overnight hereAdaptive clothingShorts snap up herePants snap up hereVery nice adaptive clothing here Disposable incontinence underwearFor women hereFor men hereAdult washcloths/wipes hereNon-rinse bathing wipes hereDisposable incontinence pads hereRound tipped scissors here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected]

Transcribed - Published: 24 September 2024

Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable - and can be - a challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, dignity, and grace for our care receivers and for us. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed four tips to help you navigate the pre-incontinence and early incontinence phases on your caregiving journey. Takeaways Before we introduce your tips, it’s helpful to understand what we mean by ‘pre-incontinence’ and ‘early incontinence’. Pre-Incontinence This is the phase before actual incontinence begins, when our care receiver is showing signs incontinence may be on the horizon.  Signs include: Using the trash can instead of the toilet for toilet paperNot flushing the toiletResisting drinking to avoid bathroom tripsLooking around anxiously (potentially for a bathroom) Early Incontinence When actual incontinence begins, it usually starts with urinary incontinence. Your loved one may still be trying to find the bathroom but often doesn’t make it in time. Signs include: Not getting to the bathroom fast enoughHolding their stomach, bottom, or between their legs Tip 1. Make it Easy to Find the Bathroom Yes, to us this sounds simple. To our loved one, they are disconnecting with the signs their bodies are telling them they need to go, and the steps to use the bathroom. One of the most effective ways to support your loved one during pre-incontinence and early incontinence is by making the bathroom as accessible and easy to find as possible. Tip 2. Schedule Bathroom Breaks Establishing a consistent bathroom routine can significantly reduce accidents and make the transition into full incontinence more manageable. Tip 3. Simplify Cleanup As incontinence progresses, accidents will happen. Being prepared can make cleanup easier and less stressful for both you and your loved one. Tip 4. Think Positively and Have Lots of Grace Perhaps the most important tip of all is to maintain a positive attitude and extend grace to both you and your loved one. Read More in This Blog here Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Child proof door knob cover or double deadbolt locks for external doorsChild proof door knob covers hereExtra tall pet gate from (40” to 70”) - 57” hereDisposable incontinence underwearFor women hereFor men herePadsMattress pads34”x36” here72”X36” hereDisposable incontinence pads hereBrown large pet pee pads hereEasy mopsSwiffer mop hereBona hereHard surface cleanersPine Sol herePooph hereOdoban hereFabuloso hereCarpet cleaningResolve Urine Destroyer hereResolve Ultra Pet hereBissell Pet Carpet Cleaner hereResolve Urine Destroyer Carpet Cleaning Machine Formula here Rate, Subscribe and Share Your Tips on Social Media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Linkedin: https://www.linkedin.com/in/suearmstrongryan/, https://www.linkedin.com/in/nancytreaster/Email: [email protected], [email protected]

Transcribed - Published: 17 September 2024

Description Who knew being prepared could make such a difference in managing incontinence? Incontinence can be one of the most difficult areas of our caregiving journeys. It’s personal. It’s awkward. It’s rarely something discussed — by anyone — making it potentially uncomfortable to talk about. It’s also one of the most important areas to navigate with compassion and dignity — for us and for our care receiver. Early preparation is essential. This is your moment of truth as a caregiver. Ask yourself: Can I handle this physically? Mentally? Emotionally? And if so, how? The good news is, you’ve got time to think it through, talk with others, and make smart decisions. Use this runway wisely — your future self will thank you. We are Nancy Treaster and Sue Ryan — we’ve faced incontinence care head-on. Trust us, it’s better to think about this now or you’ll wish you had. There’s a lot going on with incontinence! In this episode, we’re sharing four game-changing tips to help you be prepared. Takeaways For takeaways click here  Additional Resources Mentioned Episode 11 - Cleaning Your Care Receiver here These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Washable incontinence underwear For womenColors hereCream hereFor men Briefs hereBoxer briefs hereDisposable incontinence underwearFor women hereFor men here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Preparing for incontinence, Boundaries, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan  

Transcribed - Published: 10 September 2024

Description When a close family member is diagnosed with dementia, it can be uniquely challenging for young adults to navigate this new reality. We are Nancy and Merritt Treaster. When Merritt was in his early twenties, his dad, who was 60 at the time, was diagnosed with Frontotemporal dementia. A few short years later, his grandfather, at the age of 85, was diagnosed with Alzheimer’s disease. Merritt’s experiences led us to create this episode to help other young adults. He has distilled his thoughts on how to be better prepared into four essential tips for young adults facing a family member’s dementia diagnosis. Takeaways For takeaways click here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Young adult, teenager, boundaries, incontinence, Alzheimer's, dementia, caregiver, caregiving, dementia care, memory care, dementia caregiver blog, Alzheimer's blog, caregiver blog, senior caregiver blog, dementia caregiver tips, how to care for someone with dementia living alone, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, frontotemporal dementia, dementia caregiver tips, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan, Merritt Treaster  

Transcribed - Published: 3 September 2024

You’re going to wish you’d known about padding hard corners earlier in your caregiving journey! We are Nancy Treaster and Sue Ryan. Through our experiences as caregivers for our family members and loved ones with Alzheimer’s and other types of dementia, we’ve learned ensuring home safety is both vitally important and ever-changing. In this post, we’re sharing three main tips for managing safety — both inside and outside the home. These help you keep your loved one safe while giving you peace of mind. Takeaways Practical Tips Tip 1: Create a File of Life One of the most effective ways to keep your loved one safe is by creating a document called File of Life. File of Life was created to give first responders valuable medical and personal information when the people they’re helping can’t. The valuable information this File of Life document contains about your care receiver includes: Tip 2: Care Receiver proof Your Home As your loved one becomes more curious and restless, it’s time to care receiver proof your home. This process is ongoing — observe and adjust as needed. It’s most likely still hard for us to know what they can and can’t remember. We’re so used to them being able to think rationally, it can be a hard transition to using the position they can’t. For those of you who have raised children, it’s the same kind of process — they’re curious, you don’t know what they’ll explore, and they don’t yet know what is safe or dangerous. Tip 3: Minimize Fall Risks Falling is unfortunately inevitable. Here are steps you can take to minimize risks and impact. Pad corners and edges of furnitureRemove area rugs to prevent trippingCheck floors for any loose or risen cornersUse fall tracking devices (wristbands, shoe inserts, phone apps)Improve lighting to reduce shadowsMake shower entry safer (if you have a combination tub/shower — replace it with a shower only and install one without a lip on the floor they could trip on)Grip socks and non-slip shoesBe prepared for falls with tools like a floor lift chairInstall cameras so you can watch their movements For takeaways click here Additional Resources Mentioned File of Life: Create a document called File of Life.Child proof door knob cover or double deadbolt locks for external doorsChild proof door knob covers hereDouble keyed deadbolt hereWindow sash here Child proof cabinet locks hereChild proof stove knob covers hereChild proof refrigerator latch hereChild proof switch plate for garbage disposal hereExtra tall pet gate from (40” to 70”) - 57” hereChild padding foam hereCameras or baby monitor for the bedroom and bathroomBaby monitors - some come with motion alarms hereMotion alarm hereCameras - If your care receiver is still staying home alone, consider one with an intercomRing indoor with two-way talk hereGrip Socks hereFloor lift chairsIndeelift hereGeneric floor lift chair here  Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Home safety, child proof, dementia proof, reduce falls, Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, alzheirmers podcast, caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Transcribed - Published: 27 August 2024

If your loved one can’t do three of the things we discuss in this episode, they should not be home alone. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both know that one of the early goals for our loved one is to help them maintain their independence as long as it's reasonable. You’ll be balancing your concern for their safety with their independence, remembering their ability to stay home alone is temporary. We are Sue Ryan and Nancy Treaster, and through our experiences, we're sharing six key tips for supporting your loved one's ability to be home alone. Show Notes https://sueryansolutions.medium.com/leaving-your-loved-one-at-home-alone-six-essential-tips-b46fc1b6a1ef Related episodes Episode #7 Care Receiver Home Safety / Alzheimer’s and Other Dementias  https://youtu.be/dFlZXGn4r9k Additional Resources Mentioned These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Audit for home listLaundry: Ability to wash, dry, and put away clothesHome cleaning: Bathroom cleanliness, safe use of cleaning productsPersonal hygiene - Bathing safety, overall cleanliness  Safety with appliances and equipment: Proper use of kitchen appliances Locking and unlocking doors: Security awarenessHome safety: Identifying and removing fall risks (rugs, furniture placement)Temperature control: Appropriate use of thermostat, pre-program and cover over it, control through app. Thermostat control Control through appI use my Nest for this as well and have it on the same app as the cameras hereAmazon product works with Ring hereThermostat cover hereElectronic medication dispensing and monitoring device for caregiver hereInside and outdoor cameras Cameras with an intercomRing indoor with two-way talk hereRing outdoor with two-way talk hereTracking devices for their personApple Airtag hereSamsung SmartTag - hereShoes AirTag hereShoes generic hereWatch here Rate, subscribe and share your tips on social media! Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected]

Transcribed - Published: 20 August 2024

If you can successfully leverage tip one in this episode you will have an easy path to taking away the car keys. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we both learned that taking away the car keys can be a sensitive and important issue to address. In the beginning stages of dementia, our primary goal is to balance safety with our care receivers' desire for independence. We are Sue Ryan and Nancy Treaster, and through our experiences, we're offering four key tips. Show Notes Takeaways We offer four tips to help you. Tip 1: Understand Legal and Insurance Considerations One of the most effective ways to approach the driving issue is to familiarize yourself with the legal and insurance implications in your area. This involves researching local laws and understanding the potential consequences of allowing someone with dementia to continue driving. Tip 2: Implement Tracking Measures For those in the early stages of dementia who are still able to drive safely, tracking can provide peace of mind for caregivers while allowing the care receiver to maintain some independence. Tip 3: Gradual Transition: Riding Along and Taking Over As dementia progresses, it's helpful to start riding along frequently and gradually take over driving responsibilities. Tip 4: Removing Driving Completely Sometimes, for safety reasons, we need to take more decisive action to prevent our loved ones from driving. Additional Resources Mentioned State laws on dementiaWe found this state by state summary online but can’t vouch for the source.  https://www.dementiacarecentral.com/caregiverinfo/driving-problems/#state-lawsCheck you state or country law specifically by searching like this i the US “state name law driving with dementia” These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Tracker for their carApple Airtag hereSamsung SmartTag - hereTracking device for their car with speed detection etc … hereTracking device for their personApple Airtag hereSamsung SmartTag - hereShoes AirTag hereShoes generic hereWatch here Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan Push

Transcribed - Published: 30 July 2024

I wish I had known about this child proofing tip before I spent so much money on locksmiths. In this episode we talk about wandering. As caregivers for our husbands, parents, and other loved ones with Alzheimer’s and other types of dementia, we've learned that wandering is a complex and often frightening behavior that requires careful management. Wandering can occur both inside and outside the home, during day or night, and each scenario presents unique challenges. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four tips to address wandering while maintaining our loved ones' dignity as well as ensuring their safety. Show Notes Takeaways Outside Wandering Tip 1: Use your grapevine   Tip 2: Consider wearable tracking devices Tip 3: Register them with EMT’s and police Tip 4: Consider child proof door knob covers on doors that lead to the outside Tip 5: Consider window sash locks and a pole for any sliding doors Inside Wandering Tip 1: Safety proof the areas you allow them to go during the day Tip 2: Discuss sleeping medication with their doctor Tip 3: Allow them access at night to only the bedroom and a bathroom Tip 4: Consider cameras or baby monitors to make sure you can watch them especially at night  Tip 5: Safety proof access to stairs  Additional Resources Mentioned 7. Home Safety: Three Essential Tips / Alzheimer’s and Other Dementias  https://youtu.be/dFlZXGn4r9k These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you. Tracking devices for their personApple Airtag hereSamsung SmartTag - hereShoes AirTag hereShoes generic hereWatch hereChild proof door knob cover or double deadbolt locks for external doorsChild proof door knob covers hereDouble keyed deadbolt hereWindow sash here Extra tall pet gate from (40” to 70”) - 57” hereCameras or baby monitor for the bedroom and bathroomBaby monitors - some come with motion alarms hereMotion alarm hereCameras - If your care receiver is still staying home alone, consider one with an intercomRing indoor with two-way talk hereRing outdoor with two-way talk here Please click here to review, follow or subscribe to our podcast.   Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/

Transcribed - Published: 30 July 2024

You are going to wish you knew about the third tip in this episode much earlier! As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that communication is a constantly evolving process. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible. We are Sue Ryan and Nancy Treaster, and through our experiences, we've developed four tips to help you communicate.  Show Notes Takeaways In this episode, we're talking about communication “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence.  We offer four tips to help you. Tip 1: Help Them Plan Their Day One of the most effective ways to support your loved one is by assisting them in planning their day. This involves understanding what they can realistically accomplish and creating a manageable list of tasks for them to do. The list also helps you support them, making it easier to prompt them gently throughout the day to complete these tasks. This approach helps them feel valued and accomplished at day's end. Tip 2: Simplify and Minimize As cognitive abilities decline, it's important to simplify instructions and minimize distractions. What worked one week might be too complex the next, so constant observation and adjustments are necessary.  Tip 3: Use Positive Reinforcement and Body Language Positive reinforcement can have a profound impact on your loved one's mood and cooperation. Even if it feels unnatural at first, offering praise for completing simple tasks can boost their confidence and create a more positive atmosphere. Tip 4: Share the Truth They Need to Hear While honesty is important, we've learned that it's often more beneficial to share "the truth they need to hear" rather than the whole truth. Rather than think of this as lying, think of it as providing information in a way that minimizes their – and often our - anxiety and frustration. Everything you're experiencing in terms of communication during this early season of their dementia may feel challenging and strange. You'll be constantly adapting and adjusting your approach. But, this is just a phase. You will manage through this situation, and it will get better. Related episodes 2. Memory Loss: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform, click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Susan J Ryan

Transcribed - Published: 30 July 2024

Does it feel like a punch in the gut every time you realize something new your loved one has forgotten? As caregivers for our husbands, parents, and other loved ones with Alzheimer’s disease and other types of dementia, we've learned that memory loss in the early stages is a challenging journey. In the beginning (the early season of the diagnosis), our primary goal is to help our care receivers maintain as much dignity and independence as possible while providing support behind the scenes. We are Sue Ryan and Nancy Treaster, and through our experiences, we have four main tips that we'd like to share with you. Show Notes Takeaways In this episode, we're talking about memory loss “in the beginning”. When we say “In the beginning” we mean when you're mostly helping your care receiver manage things (often behind the scenes), while also helping them maintain their independence.  We offer four tips to help you. Tip 1: Figure Out What Information They're Struggling to Remember One of the most effective ways to support your loved one is by identifying what information they're having trouble remembering. This involves careful observation and adapting your approach to help them maintain their dignity and independence. Tip 2: Understand and Help with What They Can No Longer Do As the condition progresses, it’s important to adapt tasks your loved one can no longer manage independently. Tip 3: Get Other People Involved, As Appropriate Sharing the diagnosis with others can be a sensitive topic, but it's often crucial for both the caregiver and the care receiver. Tip 4: Watch Out for UTIs - They Can Muddle the Whole Situation Urinary Tract Infections (UTIs) can significantly impact cognitive function and behavior in people with dementia and there can often be no symptoms except a sudden cognitive decline. At the beginning it’s hard to get your head around what is happening. You will get through this phase, and your confidence will grow as you learn to handle each new situation.  Related episodes 3. Communication - in the Beginning: Four Essential Tips / Alzheimer’s and Other Dementias / Practical Tips and Candid Conversations Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, Sue Ryan, Nancy Treaster, Susan J Ryan

Transcribed - Published: 30 July 2024

We are Sue Ryan, Nancy Treaster, and Merritt Treaster. In this episode we're introducing ourselves to you and sharing why we are so passionate about bringing you practical tips and candid conversations for Alzheimer’s and other dementia family caregivers.  Show Notes Takeaways Nancy and I have known each other for many years and have often discussed our caregiving journeys together. We're both passionate about helping you navigate your caregiving journeys with fewer surprises and more confidence.  Our podcast offers practical tips and we have candid conversations to help you tackle day -to -day common dementia challenges. Our purpose is to give you the knowledge and the resources you need to navigate your journey with strength, patience, and peace of mind. We're all on this journey together. Rate, subscribe and share your tips on social media! Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform. Please click here to review, follow or subscribe to our podcast.   If you don’t see your preferred platform click on Podchaser and click at the bottom “Write my review” You can log in with Twitter, Facebook or GoogleOn the right you’ll see a box with “Follow”, “Rate and Review” and “Share”  Connect with us and share your tips: Website: https://www.thecaregiversjourney.comInstagram: https://www.instagram.com/thecaregiversjourney/Facebook: https://www.facebook.com/TheCaregiversJourneys/Email: [email protected], [email protected] Keywords Alzheimers, dementia, caregiver, caregiving, Alzheimers care, dementia care, memory care, best dementia podcast, best alzheirmers podcast, best caregiver podcast, best caregiving podcast, best caregiver podcast, dementia caregiver podcast, dementia podcast, alzheimers podcast, caregiver podcast, senior caregiver podcast, dementia caregiver tips, frontotemporal dementia, dementia caregiver tips, how to deal with dementia as a caregiver, information on dementia for caregivers, how to be a caregiver for someone with dementia, family caregiver, Sue Ryan, Nancy Treaster, Merritt Treaster, Susan J Ryan

Transcribed - Published: 30 July 2024

The Caregiver’s Journey is an innovative and refreshing way to learn how to tackle day-to-day Alzheimer's and other dementia family caregiving challenges. Using practical tips and candid conversations, Sue and Nancy help you navigate caregiving’s ups and downs, so you move from feeling frustrated and overwhelmed to confident and supported.

Transcribed - Published: 10 July 2024