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The Caregiver's Journey

Incontinence Begins: Four Essential Tips / Alzheimer’s and Other Dementias

The Caregiver's Journey

Sue Ryan and Nancy Treaster

How To, Health & Fitness, Self-improvement, Society & Culture, Personal Journals, Mental Health, Business, Education, Non-profit

51.9K Ratings

🗓️ 17 September 2024

⏱️ 27 minutes

🧾️ Download transcript

Summary

Who knew that understanding the stages of incontinence could make such a difference in our caregiving journey? As caregivers for our loved ones with Alzheimer’s and other types of dementia, we’ve learned incontinence is an inevitable - and can be - a challenging part of our journey. It’s a reality and a topic that’s not often discussed. It’s helpful for us to be prepared to navigate incontinence with compassion, dignity, and grace for our care receivers and for us. We are Nancy Treaster and Sue Ryan. Through our experiences, we’ve developed four tips to help you navigate the pre-incontinence and early incontinence phases on your caregiving journey.

Takeaways

Before we introduce your tips, it’s helpful to understand what we mean by ‘pre-incontinence’ and ‘early incontinence’.


Pre-Incontinence

This is the phase before actual incontinence begins, when our care receiver is showing signs incontinence may be on the horizon. 

Signs include:

  • Using the trash can instead of the toilet for toilet paper
  • Not flushing the toilet
  • Resisting drinking to avoid bathroom trips
  • Looking around anxiously (potentially for a bathroom)


Early Incontinence

When actual incontinence begins, it usually starts with urinary incontinence. Your loved one may still be trying to find the bathroom but often doesn’t make it in time.

Signs include:

  • Not getting to the bathroom fast enough
  • Holding their stomach, bottom, or between their legs


Tip 1. Make it Easy to Find the Bathroom

Yes, to us this sounds simple. To our loved one, they are disconnecting with the signs their bodies are telling them they need to go, and the steps to use the bathroom. One of the most effective ways to support your loved one during pre-incontinence and early incontinence is by making the bathroom as accessible and easy to find as possible.


Tip 2. Schedule Bathroom Breaks

Establishing a consistent bathroom routine can significantly reduce accidents and make the transition into full incontinence more manageable.


Tip 3. Simplify Cleanup

As incontinence progresses, accidents will happen. Being prepared can make cleanup easier and less stressful for both you and your loved one.


Tip 4. Think Positively and Have Lots of Grace

Perhaps the most important tip of all is to maintain a positive attitude and extend grace to both you and your loved one.


Read More in This Blog here


Additional Resources Mentioned

  • Episode 11 - Cleaning Your Care Receiver here

These resources contain affiliate links so we may receive a small commission for purchases made at no additional cost to you.

  • Child proof door knob cover or double deadbolt locks for external doors
  • Child proof door knob covers here
  • Extra tall pet gate from (40” to 70”) - 57” here
  • Disposable incontinence underwear
  • For women here
  • For men here
  • Pads
  • Mattress pads
  • 34”x36” here
  • 72”X36” here
  • Disposable incontinence pads here
  • Brown large pet pee pads here
  • Easy mops
  • Swiffer mop here
  • Bona here
  • Hard surface cleaners
  • Pine Sol here
  • Pooph here
  • Odoban here
  • Fabuloso here
  • Carpet cleaning
  • Resolve Urine Destroyer here
  • Resolve Ultra Pet here
  • Bissell Pet Carpet Cleaner here
  • Resolve Urine Destroyer Carpet Cleaning Machine Formula here


Rate, Subscribe and Share Your Tips on Social Media!

Thanks for listening! If you enjoyed this episode, please leave a review and subscribe on your favorite podcast platform.


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Transcript

Click on a timestamp to play from that location

0:00.0

This is the Whole Care Network,

0:02.5

helping you tell your story one podcast at a time.

0:16.3

Content presented in the following podcast is for information purposes only.

0:22.7

Views and opinions expressed in this podcast are solely those of the host and guests

0:28.1

and may not represent the views and opinions of the Whole Care Network.

0:33.2

Always consult with your physician for any medical advice.

0:36.8

And always consult with your attorney for any legal advice. And always consult with your attorney for any legal advice.

0:40.5

And thank you for listening to the Whole Care Network.

0:52.6

We both wish we knew more about incontinence once it began.

0:56.8

Oh, we sure do.

0:57.9

For incontinence, we actually created a five-part series because there's a lot going on with incontinence.

1:06.4

Yes, there is, and it's coming.

1:09.4

It sure is.

1:10.8

Our five episodes include episode nine, Yes, there is, and it's coming. It sure is.

1:17.5

Our five episodes include, episode nine is preparing for incontinence before it begins.

1:24.6

Episode 10 is a phrase we coined called pre-incontinence, and when incontinence first begins.

1:30.2

Episode 11 is cleaning our care receiver when there's the beginning with urinary incontinence. Episode 12 is about cleaning our care receiver when they're either bed-bound

1:38.1

or when they're still mobile and yet we've got to clean the bowel movement. And then episode 13 is incontinence

1:46.9

overnight. This is the second episode in our five-part series. And in this episode, we're

1:52.6

focused on helping you navigate your journey once incontinence begins. We don't believe anyone

1:58.8

should have to make this up on their own.

2:01.7

Absolutely not. And we want you to be able to handle it better than we did.

...

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