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Well, Now: The Isolation of a Life-Threatening Diagnosis

Slate News

Slate Podcasts

News Commentary, Politics, News

4.56K Ratings

🗓️ 9 June 2024

⏱️ 40 minutes

🧾️ Download transcript

Summary

Each week, we’ve explored wellness from different perspectives, but we haven’t talked about what it means to live a full life while grappling with the real possibility of death.  Most of us hope for a full, long life with “good” health. But a serious, possibly fatal diagnosis changes everything: Our relationships with work, loved ones, and even the way we see ourselves. On this week’s episode of Well, Now we speak with author, journalist, and artist Suleika Jaouad. Many learned about her work in the Oscar-nominated documentary American Symphony – which chronicled her marriage to musician Jon Baptiste as his career soared and her leukemia re-emerged.  But Suleika began documenting illness and identity long before starring in an award-winning film. If you liked this episode, check out: “People Feel Like They’re Drowning”: The Long COVID Survivors Left Behind Well, Now is hosted by registered dietitian nutritionist Maya Feller and Dr. Kavita Patel. Editing and podcast production by Vic Whitley-Berry with editorial oversight by Alicia Montgomery. Send your comments and recommendations on what to cover to wellnow@slate.com Learn more about your ad choices. Visit megaphone.fm/adchoices

Transcript

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0:00.0

You're listening to Well Now,

0:05.0

You're listening to Well Now,

0:08.0

Slate's podcast on Health and Wellness.

0:10.0

I'm Kavita Patel.

0:11.0

And I'm Maya Peller.

0:12.0

Each week we've explored wellness from different perspectives.

0:16.0

We have yet to really talk about what it needs to live a full life

0:19.0

while grappling with the very real possibility of death.

0:23.3

Most of us hope for a full long life

0:26.2

with quote unquote good health.

0:28.7

It's true, Maya.

0:29.6

Very rarely do I start a conversation

0:32.1

with anybody, a family member or a patient or even just a casual

0:36.4

acquaintance with, you know, hey, don't you want to have a shorter life or don't you want to have a serious

0:42.1

or potentially fatal diagnosis, but unfortunately, as you know, Maya, that happens and a serious diagnosis or something such as cancer completely puts fear into people's hearts because

0:55.7

everything changes the way we see our loved ones, even the way we see ourselves.

1:01.6

So before we speak with our guest, Maya, can you talk about how you've

1:06.1

witnessed a life-changing diagnosis play out in your professional environment or

1:10.8

your personal environment? Yeah, Kavita, so I'm going to tell you a little bit about how it's played out in work.

1:18.0

And when I'm thinking about the tools that I develop to help patients move through these challenges.

1:24.0

What I can really say is that it's more around supporting them in the moment while being real and honest about what the future holds.

1:36.0

Nutrition, if you know we're thinking about kind of end of life, it shifts.

...

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