What if we told you it was possible to prevent, manage, or cure all disease by the end of the century?

Well, the Chan Zuckerberg Initiative is on an ambitious mission to make that a reality.

Go to CZI.com or follow them on social media to learn more about how they're building a better future for everyone.

Hi, everyone, I'm Katie Couric, and this is next question.

Approximately 10,000 rare diseases affect as many as 400 million people around the world.

And women leaders have been truly at the forefront of bringing awareness and driving change.

Today we have the privilege to talk with four of these women about the unique challenges in rare diseases

and patient advocacy and research and how their resilience and ingenuity has really

moved the needle toward treatments and cures. I'm always excited to be here with my friend

Tanya Simichelli. Tanya, we've been here.

This is our third year at the She Media tent.

So she may be a familiar face to some of you.

Tanya joined CZI, the Chan Zuckerberg Initiative in 2017 and launched rare as one.

Two years later, prior to that, she has over 28 years of experience in science

policy and advocacy. Meanwhile, I'm not doing this in order necessarily. Tara Zier, who is at the

end there, is the founder and president of the Stiff Person Syndrome Research Foundation.

Tara was diagnosed with Stiff Person Syndrome Research Foundation. Tara was diagnosed with stiff person syndrome in 2017, so she's here to talk about her experience

as both a patient and an advocate.

Dr. Christina Miyaki is next to Tara.

She's the director of the Genetics Arithmetic Program and an associate professor at the Baylor

College of Medicine and collaborates with patient organizations to study these conditions and help

search for treatments and cures. She knows firsthand the value of patient-centered research.

...