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Life Changing

Vitiligo turned all of my brown skin white

Life Changing

BBC

Society & Culture, Personal Journals

4.6804 Ratings

🗓️ 12 May 2021

⏱️ 30 minutes

🧾️ Download transcript

Summary

Sheetal Surti was born in to a British South Asian family in a small town in the East Midlands. Aged seven Sheetal noticed a white patch behind her ear. She didn’t think much of it but soon more patches appeared and started to spread.

She was diagnosed with vitiligo – a skin condition where unpigmented patches appear on different parts of the body. And so the treatments began. Some were medically advised, some were recommended by friends. Most of them were unpleasant, one in particular was horribly painful. But most importantly, for Sheetal, they didn’t work.

It was a lot for a girl going through puberty to handle and Sheetal’s answer was to slap on a smile and ignore it. While she couldn’t cover her patches, she became a master of covering up her feelings. Because of her appearance some people would ask if she had leprosy or skin cancer, others would tell her that she’d never get married or have a family.

By 22 all of her skin had turned white. She no longer resembled the rest of her family. People would look at her quizzically when she told them her Indian name. After a while she would explain by telling them she was born in the 70s and her parents had gone through a hippie phase. She’d never talk openly about her vitiligo.

Then, aged 35, Sheetal was watching a TV programme where people with vitiligo were talking about their condition. It was a turning point for her and the day she finally started to address her questions about belonging, her lost identity and the shame she’d buried for so many years.

If you would like more information on vitiligo please visit www.nhs.uk

Transcript

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0:00.0

Before you listen to this BBC podcast, I want to tell you why I love podcasting.

0:04.7

Hi, my name's Tommy Dixon, and I make podcasts for the BBC.

0:08.4

I'm a big fan of stories, always loved a good book.

0:11.4

But when I started commuting for my first job, I discovered podcasts.

0:15.4

I was blown away by how a creative idea and the right mixture of sounds could take you into

0:19.2

a whole new world full of incredible stories. You know, the type that make you go, wow. And that kind of inspired me to

0:25.2

give it a go myself, which to cut a long story short led to a BBC training scheme and a whole

0:30.0

new career giving other people that exact same feeling. So if you want to hear amazing stories

0:34.2

that make you go wow like I did, they're just a tap or click away on BBC Sounds.

0:40.8

BBC Sounds, music, radio, podcasts. Hi, this is Jane Garvey and you're listening to Life-Changing.

0:47.8

Every week I'm talking to somebody who's lived through a turning point that's made them rethink their

0:53.5

lives. And today, we're going to meet a woman who's had to a turning point that's made them rethink their lives. And today, we're going

0:55.3

to meet a woman who's had to wrestle with the fundamental question of belonging. She has a rare

1:01.7

form of the skin condition, Vitaleigo. It's called Universal Vitaleigo, and this means that

1:08.3

all of her brown skin turned white. Her name is Sheetal Serti.

1:14.0

Sheetal, can you hear me?

1:15.8

I can. Yes, are you all right?

1:18.1

I'm good, thank you. Just a bit nervous.

1:20.4

I appreciate that you haven't talked much about this, have you?

1:24.1

No.

1:25.1

I know that you may not find it 100% easy.

1:27.9

Okay.

...

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