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Sickboy

The Mystery Brain Disease That Is Stumping The Medical World

Sickboy

CBC

Society & Culture

4.8524 Ratings

🗓️ 4 July 2021

⏱️ 54 minutes

🧾️ Download transcript

Summary

Dementia. Weight loss. Muscle atrophy. Dozens of people between 18 and 80 years old living in northeastern New Brunswick have an unexplained brain disease with those symptoms. Roger Ellis, a 63 year old Bathurst man is one of them. Today on Sickboy Podcast, Roger's son Steve joins the hosts to talk about their fight for some answers not only from doctors, but also from the government of New Brunswick.

Transcript

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0:00.0

This week on two blocks from the White House.

0:03.2

We're talking about our recent travels and what we've learned from them.

0:06.4

I just got back from the Middle East after covering the Iran War.

0:09.6

And I took what felt like the shortest trip to France ever,

0:12.7

accompanying Secretary of State Marco Rubio to the G7 Foreign Ministers meeting on Friday.

0:17.8

And I'm in Florida this week for the Artemis II Space Lunch.

0:21.6

Join me, Katie Simpson and my fellow Washington correspondents, Paul Hunter and Willie

0:25.7

Lowry, every week on two blocks from the White House.

0:31.0

This is a CBC podcast.

0:34.1

Welcome to Sick Boy, a podcast where we talk about what it's like to be sick.

0:38.1

This week's guest is Steve.

0:40.0

He's the son of Roger Ellis, a man living with an unexplained brain disease.

0:45.3

Let's talk about it.

0:52.8

Well, we are sitting here with our new friend Steve, all the way from beautiful Bridgewater, Nova Scotia, just where the recording started there.

1:02.7

We had a little love fest for the south shore of Nova Scotia.

1:07.2

But that is not what we are here to talk about.

1:09.9

What we are here to talk about is actually something that came up on the show not too long ago,

1:18.5

maybe two or three weeks ago.

1:21.7

We had discussed, we had a little discussion about this mystery brain illness that that has kind of crept up

1:33.6

in the Atlantic province of New Brunswick here in Canada.

1:38.6

If you aren't familiar with what it is, maybe go back and listen to a Feel Good Friday episode from a couple weeks back when we touch on it. But we're not going to tell you, we're not going to tell you what episode it was. You're just going to have to like, you're just going to have to go back and listen to like 30 minutes or so of a few episodes. Skip around a bit. I honestly, you'll find it. I probably should have prep that because I actually don't fucking know what episode

2:01.6

it was that we talked about that one. But it was, it was recently. And, uh, and this, this like neurological disease, uh, that's coming in New Brunswick is stumping everyone. And, uh, Steve, you were sitting here with us today because, uh, you don't, at least as far as we know,

...

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