Hello everyone and welcome back to another episode of On the Line. Today is going to be a really

interesting episode, I think, because I have Imogen Pennell, who is the health information manager

at Joe's Cervical Cancer Trust, which is UK's only cervical cancer charity? Yeah, so we like to call ourselves the

leading cervical cancer charity because we're the only one in the UK that's dedicated to kind

of supporting women who are affected by cervical cancer and their families, but we also do a lot

around prevention and cervical health generally. So what is a health information manager?

It's a very good question. It sounds fancy. But basically what it means is I'm responsible for

creating the charity's health information. So I'll work with users, which is kind of a jargony

term for just people who have a certain experience. So maybe they've had cervical cancer,

maybe they've just gone for screening and have had an experience that they want to share, as well as experts who

will tell us, yes, this is right or no, this is wrong. And then I'll take those comments and

I'll kind of make it into something that's hopefully understandable and interesting for the general

public to read. Okay. So I think the first thing we should probably do is talk a

little bit about how the charity started. Yeah, let's do that. So it was started by James Maxwell

and his wife, Joe. And Joe unfortunately died of cervical cancer at age 40.

But what they found when she was diagnosed is that there was just no information there.

They couldn't find anything about cervical cancer because it is considered a rare cancer.

Is it?

Yeah, it is.

And they also couldn't find anyone else who'd had that experience.

So she felt really isolated. And obviously

her family around are trying to support her. It's just really difficult when there's, there's not

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