I'm Allison Berenger and from KCRW, you're listening to Bodies.

Angelina Fanus is slowly losing her voice.

I love my boy, my boy.

My boy, my boy.

My boy, my boy.

My girl, my girl.

When Angelina was 29, she was diagnosed with ALS.

ALS is a progressive neurodegenerative disease that affects your ability to control your muscles,

muscles that help you walk, swallow, and breathe.

After symptoms start, people typically die within three to five years.

Today, Angelina is nearly a decade into living with ALS.

She can still get around in a motorized wheelchair, but she's almost fully paralyzed, and

she started making preparations for her death while she still can.

We made an episode with Angelina in 2020 called Not This Again.

When she was first diagnosed, she was working as a journalist in New York City,

and the episode is about her coming to terms with having to move back in with her parents,

about her love of psychedelics, and lucid dreaming.

If you haven't heard that episode, you might want to go back and listen to that first,

but today's episode can also stand alone.

This episode is about what comes between the moment we're living in now,

and the moment we take our last breath.

Of course, every single one of us is somewhere along that in between,

...