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Today in Focus

The autistic women denied a diagnosis for decades

Today in Focus

The Guardian

News, Daily News

4.65.9K Ratings

🗓️ 24 November 2021

⏱️ 29 minutes

🧾️ Download transcript

Summary

When the television presenter Melanie Sykes and the model Christine McGuinness revealed they had been diagnosed with autism as adults, it brought new attention to the challenges for others like them whose symptoms have been missed. This is the story of one autistic woman - and how diagnosis in her thirties changed her life. Help support our independent journalism at theguardian.com/infocus

Transcript

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0:00.0

This is the Guardian.

0:09.3

Today, why so many autistic women have to fight for recognition?

0:22.1

For Carly Jones, life has always come with some added complications.

0:26.5

Social imagination, that's the most difficult for me.

0:29.6

If I say something, somebody says something else, what happens next?

0:34.2

Kind of for seeing social consequences, I can't get across

0:38.8

importantly enough just how difficult that is to live like that.

0:43.2

She's struggled with school, friends, and the outside world.

0:48.4

Incredibly sensitive to light. Lights can be incredibly difficult for me.

0:53.7

They can make me go nonverbal.

0:55.5

And sometimes she could be in harmful physical pain without even realizing.

1:00.3

When I was 14, I had to pen to sitis and I didn't know until

1:04.6

basically needed to be taken out as an emergency surgery.

1:10.6

Then, at 32, she was diagnosed as autistic and everything began falling into place.

1:18.9

But because she was a woman, the world still didn't quite believe her.

1:23.2

If I had a pound, for every time somebody said to me,

1:26.6

oh, but you don't look autistic, I'd be a millionaire by now.

1:29.3

Last week, TV presenter Melanie Cites and the model Christine McInnis

1:34.0

both revealed that they were autistic.

1:35.6

And that, just like Carly, they weren't diagnosed until well into adulthood.

1:40.6

I just think it's going to help so many other women,

1:44.4

either if they are already autistic and don't talk about it, come out

...

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