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Life Kit

Take Control Of Your Care When You're Seriously Sick

Life Kit

NPR

Health & Fitness, Self-improvement, Kids & Family, Education, Business

4.33.9K Ratings

🗓️ 10 July 2019

⏱️ 27 minutes

🧾️ Download transcript

Summary

Finding out you have a serious medical condition can leave you reeling. These strategies from medical and lay experts will help you be in control as you navigate our complex health care system and get the best possible care.

Transcript

Click on a timestamp to play from that location

0:00.0

One day back in 2008, Liz saw me was at work and she started feeling dizzy.

0:04.8

So dizzy that I thought gosh, I should probably lay down on the ground and I laid down on the ground.

0:10.5

That was a day that totally changed her life.

0:12.8

And then suddenly my body started convulsing, which was a new experience to me.

0:17.8

And it was happening on one side of my body and then eventually I just blacked out.

0:23.0

And many hours later I woke up in the emergency department.

0:28.1

She was scared and she was overwhelmed.

0:30.6

The doctors weren't sure what was going on.

0:32.7

They found something on an MRI of her head and they told her there was something wrong with her brain.

0:36.9

She needed surgery.

0:38.1

And that was the first scary part of, oh my gosh, we're going to open up your skull and go in and

0:43.2

tools are going to be in there pulling something out.

0:46.1

Liz found out what was going on a few weeks later and it ended up being not only terrifying,

0:51.1

but also pretty confusing.

0:52.7

The words of what you have are delivered in really technical speak.

0:57.2

They don't say you have brain cancer.

0:59.1

They say they, the doctor, Neuro-Ossurgeon says you have a grade two astrocytoma.

1:04.4

It has gamis-ositic properties.

1:06.6

Liz finally had a diagnosis, but she still had one burning question.

1:11.2

So do I have brain cancer?

1:13.4

You know when you're hearing the words but have no idea what's really being said?

1:17.0

She had all of this information but no clue about what it meant.

...

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