S1E45 / In for the Long-haul / Diana Berrent, Eli Musser, Marcus Tomoff, Marjorie Roberts

EPIDEMIC with Dr. Celine Gounder

KFF Health News and Just Human Productions

Society & Culture, #Eradication, Medicine, #Covid, Science, Life Sciences, #Sarscov2, Documentary, #Coronavirus, #Covid19, Health & Fitness, #Smallpox

4.6 • 1K Ratings

🗓️ 2 October 2020

⏱️ 25 minutes

🔗️ Recording | iTunes | RSS

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Summary

“It's not like the straight trajectory towards recovery… It very feels very much like a one step forward, two steps back. People referred to it as the Corona coaster, because you don't know where it's going to take you next” —Diana Berrent COVID “long-haulers” are people who have extended experiences with COVID symptoms that never let up, or keep recurring. The virus is so new that we do not have a clear picture of what each person’s experience with the disease will be like. In today’s episode, we are hearing from members of the Survivor Corps — a group of COVID long-haulers. Diana Berrent, Marcus Tomoff, Eli Musser, Marjorie Roberts, share their experiences with the ups and downs of relentless COVID symptoms, how the virus has impacted their life, and also their struggles with getting medical care. This podcast was created by Just Human Productions. We're powered and distributed by Simplecast. We're supported, in part, by listeners like you. #SARSCoV2 #COVID19 #COVID #coronavirus

Transcript

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0:00.0	It's not like the straight trajectory towards recovery that we're used to with any sort of normal virus or flu that we've experienced.
0:12.8	It feels very much like a one step forward, two step back.
0:18.2	People refer to it as the coronavirus.
0:35.3	I'm your host Dr. Saline Gounder. Diana Barrett is a photographer living on Long Island. When the coronavirus first
0:51.5	started to make news in the United States, she took it really seriously.
0:55.4	Her mother is elderly and her husband has MS.
0:58.8	Between the two of them, I was quite concerned and had actually been taking a fair number of precautions to the point
1:05.4	where other people thought that I was being a little hysterical in my reaction.
1:10.4	On March 9th, Diana had a meeting with a group of 8 people.
1:14.0	Just days before, two of the people at that meeting had been at a conference in New York City.
1:19.0	That conference turned out to be a super spreader event.
1:22.0	So I was exposed on the evening of March 9th
1:25.0	and I woke up on and you really couldn't script it.
1:28.9	Friday the 13th of 2020, I mean, it almost writes itself, but I woke up with every classic symptom of COVID. I had
1:38.7	103 fever, I had a respiratory infection, I felt like I had an elephant sitting on my chest.
1:44.4	Her husband, son, and daughter all got COVID. Their cases were mild. Hers was not.
1:51.0	The other symptoms that I had I had soul crushing headaches. I had deep inner
1:56.1	ear pain tremendous nausea. I lost you know 12 15 pounds in two and a half weeks.
2:03.2	During this time, Diana started a Facebook group
2:05.6	for COVID patients called Survivor Corps.
2:08.4	Her initial goal was to organize people
2:10.4	with COVID antibodies to donate plasma.
	...

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