Parkinsonism
Movers and Shakers: a podcast about life with Parkinson's
Podot
4.6 • 1.1K Ratings
🗓️ 20 September 2025
⏱️ 34 minutes
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Summary
Parkinsonism is the term used to refer to a group of conditions – like multiple system atrophy (MSA), progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and Lewy Body Dementia – which resemble Parkinson's in some of their symptoms. To discuss these sibling conditions, the Movers & Shakers are joined at the pub by guests from across the spectrum who share their stories – often very uplifting – about learning to live with the new realities brought on by their illnesses.
Sponsored by Albion Chambers.
Presented by Rory Cellan-Jones, Gillian Lacey-Solymar, Mark Mardell, Paul Mayhew-Archer, Sir Nicholas Mostyn and Jeremy Paxman.
Produced and edited by Nick Hilton for Podot.
Sound mixing by Ewan Cameron.
Music by Alex Stobbs.
Hosted on Acast. See acast.com/privacy for more information.
Transcript
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| 0:00.0 | Podoh. You're listening to Movers and Shakers, a podcast about living with Parkinson's. The show is |
| 0:14.0 | generously sponsored by Albion Chambers Bristol, a preeminent set of barristers specialising in providing |
| 0:19.7 | the highest quality legal advice and representation in criminal, family, inquest and regulatory law. |
| 0:29.5 | Hello and welcome to another episode of Movers and Shakers. I'm Rory Kathleen Jones. We're back in the pub. You can hear the sound effects. |
| 0:37.0 | We're armed with pints of bitter, |
| 0:38.3 | cups of tea, chips, salads, healthy eating, as we're being prepared to discuss today's |
| 0:43.6 | weighty topic with some great guests. First, though, let's see who's turned up. |
| 0:48.3 | Nicholas Mostyn, Jillian Lacey Solomon. |
| 0:50.7 | Malcolm Rodeau. Paul Mayhew Arta. |
| 0:53.0 | Excellent to have you here. Now, we get plenty of messages to our email inbox, which, by the way, is feedback at Movers and Shakerspodcast.com, with ideas for episodes. And today we're responding to a couple of people who felt strongly that we'd missed out on an important subject. Every year, quite a few people had misdiagnosed with Parkinson's when |
| 1:11.7 | it later transpires that they have another condition with similar symptoms, but which does not |
| 1:16.4 | really respond to the drugs we take. Among these conditions, sometimes labelled as Parkinsonism, |
| 1:22.2 | are progressive supronuclear palsy, PSP, corticabasal degeneration CBD, and Louis Body Dementia. Today, we're joined by |
| 1:31.2 | Carl Perkins, who has Louis Body Dementia and Lisa Rodriguez, who's been diagnosed with CBD. We'll hear |
| 1:36.5 | their stories in a moment. But first, let's get an overview from Rebecca Packwood, the chief |
| 1:41.5 | executive of the PSP Association. Rebecca, what is the PSP |
| 1:46.7 | Association? Yeah, the PSP Association is a charity that supports people living with progressive |
| 1:52.2 | supernuclear palsy and corticobasal degeneration. We provide support to the people with the conditions |
| 1:58.2 | and their families. We also raise awareness, especially in the clinical community of how to give the best care to people with the people with the conditions and their families. We also raise awareness, especially in |
| 2:01.3 | the clinical community of how to give the best care to people with those conditions and we fund |
| 2:06.3 | medical research. Now, we know a bit about Parkinson's, but what are these diseases? Right. So these |
| 2:12.3 | are movement disorders. They're relatively rare neurological, degenerative conditions. They are life limiting. |
... |
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