4.7 • 3.6K Ratings
🗓️ 7 April 2023
⏱️ 72 minutes
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0:00.0 | Hello and welcome to another episode of Iway with Jameela Jamel, a podcast against shame. |
0:05.0 | I hope you're well and I hope you enjoyed today's episode. It's one that you've been asking for for ages |
0:10.0 | and it just took me a while to find the right guests and I definitely did. |
0:14.0 | I wanted to be very specific because it's a subject that is so personal to me |
0:18.0 | because of my experience with chronic illness. I have a list of anosendrome. I have HGDS |
0:25.0 | which means I have the hypermobile type. So, Aylis, Danos, and Dome is a connective tissue disorder |
0:29.0 | and we get into it more when we talk in the episode. But mine also means that I'm hypermobile |
0:35.0 | so I dislocate a little of the time and I'm overly stretchy, not in like a sexy fun way. |
0:41.0 | It can be sexy and fun I guess. But it's also very painful and very scary and problematic |
0:47.0 | sometimes, especially if you're trying to have a big fun life and career which I am. |
0:53.0 | And so I talk in quite a lot of detail about my personal experience with that chronic health condition |
1:01.0 | and it doesn't really matter what the specificities are of each chronic health condition. |
1:05.0 | We are all in this together because we will have the shared experience of trying so hard |
1:10.0 | not to feel completely persecuted, of not just giving up every single day, |
1:15.0 | feeling like nobody understands you and nobody's careful enough with you |
1:19.0 | and especially if it's a chronic health condition in which you look okay. |
1:23.0 | Similarly with mental health, if you don't look the way we think mentally ill person looks |
1:29.0 | and people just don't receive you with care or sympathy or even belief, they just gaslight you. |
1:34.0 | And that's a massive part of how chronic health doesn't just eat away your body, |
1:40.0 | it can eat away your mind and the only way to really stop that is to be able to come together |
1:46.0 | and share our experiences and sort of ungasly each other. |
1:50.0 | And that's exactly what you hear two women who've never met before do in this chat. |
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