For Henry

Big Time Adulting

Caitlin Murray

Personal Journals, Comedy, Society & Culture, Momlife, Parenting, Kids & Family

4.9 • 811 Ratings

🗓️ 4 February 2022

⏱️ 32 minutes

🔗️ Recording | iTunes | RSS

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Summary

In this episode, I speak in depth with Henry's mom. Henry is battling a one in a million, severe neurological disorder called Alternating Hemiplegia of Childhood (AHC). Henry's AHC causes him to randomly become paralyzed, have seizures and apneas where he stops breathing for periods of time. Each episode threatens a trip to the hospital for Henry and his parents, and each episode could potentially hold life threatening consequences - an incredibly difficult and terrifying way for Henry and his parents to go through life.

The astounding part about Henry's story is that they have found a treatment that would most certainly be life changing for Henry and, even more importantly, potentially life saving. The only barricade between Henry and this treatment is money. Henry's parents have been tasked with raising $3 million to develop the drug he needs, and so they started a foundation and have been doing everything possible to spread the word. Listen in to hear Mary, Henry's mom, describe in greater detail what it has been like for Henry, and where they are in the process now.

To donate and learn more about Henry and AHC go to www.forhenryahc.org or find them on instagram @forhenryahc

Transcript

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0:00.0	everybody welcome back to big time adulting podcast um that's my favorite thing to do i have a very
0:08.8	special guest here this week mary saladino saladino saladino saladino i really like to say your last name um
0:17.0	no do i anyway oh that's what that reminds me of like in the movie Elf when Will Farrell says
0:23.0	San Francisco or Francisco, Francisco. It's not San Francisco, it's just Francisco. Anyway,
0:30.3	sorry, back to the point of this entire episode here. Mary is the mom of Henry. And if you've been watching me on Instagram
0:41.0	over the last couple of weeks, I've been talking about Henry quite a bit. I feel like Mary
0:46.9	and I came to find each other on purpose. And in the short time, we've been communicating,
0:53.4	I get emotional because this is just such a touching story.
0:58.0	I feel a special bond with Mary.
1:00.0	And I think part of what has brought us together is though through two very different circumstances, the mutual respect and understanding we both have for all it takes
1:12.9	to care for a sick child. So today I have Mary because I wanted to give her an opportunity
1:20.2	to share her story through another platform so we can continue to spread the word about Henry.
1:26.2	But Mary, before we get started on talking about your
1:30.6	little adorable sweetie pie warrior, Henry, I wanted to ask you a little about you and like
1:39.0	your hubby, your love story. I just, I love knowing the history of a family and I think other people would too.
1:46.6	So tell me, how did you meet your husband and like when did you cats get married, all of that?
1:53.6	Oh, sure. My favorite story to tell aside from Henry, we were set up by a mutual friend and his wife at a New
2:02.5	Year's Eve party in 2016.
2:04.8	And both of us were apprehensive about attending a party.
2:08.6	We definitely didn't want to be set up.
2:10.8	We also just love, absolutely love this friend and his wife.
2:14.8	But we thought, you know, the chances that they would have the
	...

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