Climate change, the EPA and protecting medical privacy
To the Point
KCRW
4.4 • 583 Ratings
🗓️ 18 November 2019
⏱️ 14 minutes
🧾️ Download transcript
Summary
Personal medical records behind public health regulations are now stamped "confidential." If they aren’t opened up, the Trump EPA says it will ignore them. Is that “transparency” really needed, or is it a way to avoid tough rules against new health risks that climate change is bound to require?
Transcript
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| 0:00.0 | Carolinas are being swamped by these heavy rains and high winds from Hurricane Florence. |
| 0:09.0 | The best scientists in the world are all telling us that our activities are changing the climate. |
| 0:14.0 | I don't think it's a hoax. I think there's probably a difference, but I don't know that it's man-made. |
| 0:19.0 | Experts say that we have until 2030 to avoid catastrophe. |
| 0:24.1 | Hi, I'm Mormon Alney, and this is a to-the-point climate change update. |
| 0:29.3 | The Trump Environmental Protection Agency, led by Andrew Wheeler, is ready to change the rules |
| 0:34.4 | for the scientific evidence that leads to public health regulations. That reportedly, |
| 0:40.8 | though, will significantly limit the scientific and medical research that the government can use |
| 0:45.6 | to protect the public. Among those making that argument is Andrew Rosenberg. He is director at the |
| 0:51.2 | Center for Science and Democracy at the Union of Concerned Scientists. |
| 0:55.0 | And welcome aboard. Good to have you. |
| 0:56.0 | Nice to be with you, Warren. |
| 0:57.0 | We'll get to the implications for climate change in a moment. |
| 0:59.0 | But first of all, tell us what exactly this new regulation does. |
| 1:03.0 | So the EPA proposed over a year ago a regulation that would say that the only scientific studies that the agency would rely on for any of its |
| 1:16.2 | regulatory actions would be those where all of the data, all of the computer code, all the |
| 1:21.8 | models, any other information was fully publicly available, all the way back to the raw data, |
| 1:27.0 | raw data, meaning the data points that were collected by researchers as they were collected. |
| 1:34.2 | So the individual data points, and that they would only use studies where they could release that data as a matter of policy. |
| 1:44.1 | The difficulty, of course, is that many of the |
| 1:47.7 | studies, when you're looking at public health outcomes, contain confidential medical information. |
| 1:53.5 | So you may not release that raw data publicly because it's protected for patient confidentiality and by good research practice. |
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