3 • 2.6K Ratings
🗓️ 25 November 2025
⏱️ 41 minutes
🧾️ Download transcript
For as long as Cienna Ditri can remember, she has had random bouts of “heavy legs”and loss of vision. As she got older - that sensation grew into episodes in which she could not move altogether. Cienna was passing out multiple times a day and frequently losing vision. After a slew of misdiagnoses - she was unsure she would ever understand the cause…until one doctor found the needle in the haystack.
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****** SPOILER ALERT BELOW ******
You can learn more about Periodic Paralysis at periodicparalysis.org
You can follow Cienna at @chronicallyperservering on instagram, tiktok, facebook, and youtube.
You can find Cienna’s substack “In Rare Form” at chronicallypersevering.substack.com
See omnystudio.com/listener for privacy information.
Click on a timestamp to play from that location
| 0:00.0 | Ruby. |
| 0:06.5 | And I was walking back, and I lost my vision. |
| 0:10.7 | It was all gone. |
| 0:12.7 | I did not know what was going on. |
| 0:14.5 | Nothing like that had ever happened to me before in my life. |
| 0:17.7 | Doctors just gave her a timeline of, |
| 0:20.7 | we don't think you'll live past your 25th birthday. |
| 0:23.4 | The life becomes so restrictive that the fear that dominates now becomes unbearable. |
| 0:33.6 | I didn't have these long-term dreams or goals because there was no long-term. |
| 0:40.1 | I was just fighting to survive every day. |
| 0:43.9 | How terrifying would it be to fight an unknown enemy? |
| 0:48.8 | One you didn't recognize and didn't see coming. |
| 0:52.3 | What if that enemy was coming from within? |
| 0:55.5 | A disease that even doctors couldn't identify. |
| 0:59.0 | Nearly half of Americans suffer from some chronic illness |
| 1:02.1 | and many struggle for an accurate diagnosis. |
| 1:06.3 | These are their stories. |
| 1:09.5 | I'm Lauren Bright Pacheco, and this is symptomatic. |
| 1:18.2 | Hi, I'm Sienna, if you haven't met me yet. |
| 1:21.3 | I would say that I am a 31-year-old disabled girl in the world just sharing my real life so that hopefully people like me see themselves represented and feel a little less alone. |
| 1:36.1 | Sienna-Ditri is sunshine in a bottle. |
| 1:39.0 | She moves through life with contagious enthusiasm and undeniable warmth. |
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