3 • 2.6K Ratings
🗓️ 18 November 2025
⏱️ 48 minutes
🧾️ Download transcript
Ian Stedman suffered 32 years with full body rashes, debilitating headaches, joint pain and hearing loss without a clear diagnosis. His Mother Barb had gone over 60 years with the same symptoms. After hundreds of doctors visits and decades of frustration - they had resigned to believe there were no answers. That is until Ian’s daughter, Lia was born covered in that all-too-recognizable rash. Ian re-ignited his search for answers in an effort to save his family.
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You can learn more about the Canadian Autoinflammatory Network at www.autoinflammatory.ca
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| 0:00.0 | There was one day my eyes were so flared I couldn't see. |
| 0:11.2 | And I remember on that day wondering, where is this going? |
| 0:15.0 | What is this? Is this getting worse? |
| 0:17.4 | It looks exactly like what we have. |
| 0:20.2 | And I looked at Ian and we just nodded |
| 0:22.2 | We knew |
| 0:23.1 | We knew she had it |
| 0:25.2 | It's not curable |
| 0:26.9 | It's a genetic change |
| 0:29.0 | And so that's in your body |
| 0:30.2 | All the time |
| 0:31.5 | One in three people |
| 0:32.8 | Untreated just don't wake up |
| 0:34.7 | Everyone has their cross to bear |
| 0:37.4 | This is my This is my burden Now I've got a kid untreated, just don't wake up. Everyone has their cross to bear. |
| 0:38.2 | This is my. |
| 0:40.0 | This is my burden. |
| 0:41.6 | Now I've got a kid. |
| 0:48.2 | How terrifying would it be to fight an unknown enemy? |
| 0:51.6 | One you didn't recognize and didn't see coming. |
| 0:55.0 | What if that enemy was coming from within? |
| 0:58.4 | A disease that even doctors couldn't identify. |
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