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On Being with Krista Tippett

Bruce Kramer — Forgiving the Body: Life with ALS

On Being with Krista Tippett

On Being Studios

Society, Spirituality, Society & Culture, Sociology, Culture, Science, Religion & Spirituality, Krista Tippett, Social Sciences, On Being, Arts

4.710.2K Ratings

🗓️ 26 March 2015

⏱️ 51 minutes

🧾️ Download transcript

Summary

From the moment of his diagnosis with ALS, Bruce Kramer began writing — openly, deeply, and spiritually — about his struggle, as he puts it, to live while dying. He died on March 23, 2015, while we were in production on this show. His words hold abiding joy and beauty, and reveal an unexpected view opened by this disease.

Transcript

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0:00.0

We know how this ends. That's the title of Bruce Kramer's memoir about his life with ALS.

0:06.5

A lifelong educator and musician, he was diagnosed with the disease five years ago and began

0:13.1

hospice last fall. He died while we were producing this conversation for air. From the

0:18.7

moment of his diagnosis, Bruce Kramer began to write, openly, deeply, and spiritually,

0:25.6

about his struggle to live while dying. His words hold a biting joy and beauty and reveal

0:32.4

an unexpected view inside this disease.

0:36.2

What I found as I told people about ALS was they began to tell me about ALS. They began

0:46.5

to tell me about the ALS they carried. They began to tell me about the struggles that they

0:53.0

were working through too. I think that they told me not because it was a way of cleansing

1:01.4

or a way of… but it was a way of saying, we carry these things. I want you to know I'm

1:10.0

carrying something just like you are. What I began to realize is that these things that

1:19.6

we carry, these struggles, emotional, physical, spiritual, that these struggles, they weren't

1:29.4

transparent, but that ALS revealed them.

1:33.7

I'm Christa Tippett and this is on being.

1:41.5

Bruce Kramer was the dean of the College of Education, Leadership and Counseling at the

1:45.6

University of St. Thomas in St. Paul, where he served on the faculty for over 19 years.

1:51.5

He was also a passionate music lover and was a choir conductor for most of his adult

1:55.8

life. When I met him, he was confined to a wheelchair, breathing with the help of a

2:01.0

mask connected to a bipat machine. I sat with him and his wife Ev at their home in

2:07.0

suburban Minneapolis.

2:10.5

In 2010, you were 54 at the age I am now. You just completed your second year as the dean

2:17.8

of the College of Education, Leadership and Counseling. Your kids were grown and settled.

...

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