110 - Finding support with POI in the digital space with Anita Elawure
The Dr Louise Newson Podcast
Dr Louise Newson
4.7 • 938 Ratings
🗓️ 3 August 2021
⏱️ 31 minutes
🧾️ Download transcript
Summary
In this inspiring episode, Dr Louise Newson talks to Anita Elawure, a women’s health advocate, who shares her startingly honest experience of Premature Ovarian Insufficiency since she was a teenager. After many years of trying to ignore her situation, she began to look into what it really meant, for her fertility and the impact of living in a postmenopausal state for the rest of her life.
Anita decided to create a platform for her to share her experiences, in the hope that she and others wouldn't feel so alone, and provide a safe place that offered support and learning from others going through POI. Eighteen months ago, Anita founded Blossom Living with POI and, as her page says, “You have me. I have you. Together we blossom.”
Anita’s top 3 tips:
- If you’re at the start of a journey with POI, find your support system. Get someone you can rely on emotionally, that can come to appointments with you or help you do research, because it’s so important.
- If you know someone facing POI, be there for them, tell them you’re here for them and ask what you can do to help.
- Sometimes it might feel like you’re going crazy. It’s OK. You’re not going crazy and your feelings are valid. Find ways to express yourself and take one day at a time. Advocate for yourself, understand your treatments, and know what you need to take care of yourself.
Follow Anita and Blossom Living with POI on Facebook, Instagram or YouTube
Transcript
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| 0:00.0 | Welcome to the Neuson Health Menopause podcast. I'm Dr. Louise Newson, a GP and menopause |
| 0:15.8 | specialist and I'm also the founder of the Menopause charity. In addition, I run the Newston Health Menopause and Well-Being Clinic here in Stratford-upon-Avon. |
| 0:31.4 | So today I'm really excited to introduce to you, Anita, who I've never met in real life. |
| 0:37.3 | So we're just meeting via |
| 0:38.7 | Zoom, as everyone else is doing now these days. She's the founder of Blossom Living with POI. |
| 0:45.1 | And for many of you who know, POI is premature ovarian insufficiency, which we'll talk about a bit |
| 0:51.1 | more in a minute. But welcome, Anita. Thanks so much for joining me today. |
| 0:55.2 | Thank you, Dr. Louise. And thank you so much for having me in here and giving me the opportunity to |
| 1:00.1 | share my story. Oh, no, it's great. And I think hopefully a lot of people who listen to me know that it's |
| 1:06.5 | all about trying to spread the word. I feel it's almost like a new religion, isn't it? It's being |
| 1:11.6 | able to listen to people's stories, listen to people's experiences, as well as knowing the |
| 1:18.3 | evidence, talking to all sorts of people. And the podcast for me is just another forum, |
| 1:24.1 | really, to try and reach more women. And so it's great. It's really good having you on. |
| 1:29.0 | So tell me a bit about yourself and then about the Blossom Living with POI, Instagram and |
| 1:34.4 | YouTube that you do. Of course. My name is Anita and I'm 31 years old, soon to be 32 in July. |
| 1:42.5 | Right. And so I'm the founder of Blossom Living a POI page that I created about a year and a half ago. |
| 1:50.5 | So one of the reason why I decided to create the page is because when I was initially diagnosed |
| 1:56.1 | with POI, which was called POF at that time, I was told. |
| 2:02.7 | It was really hard for me. I was really alone for a long time. I first alone, and there was really no one for me to kind of interact with |
| 2:08.5 | talk to or even someone else that was going through what I was going through around me. |
| 2:13.6 | And I didn't really think to look into the digital space then to find people. And I don't think there was much of a digital space then for a community of POI. So I was really alone for a long time. I was isolated. And it was one particular event that I attended that really kind of just changed my perspective. And when I met other women there that were also going through the same thing |
| 2:35.3 | and I was like wow so there are other people going through the same thing it's just not me |
... |
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