You Might Also Like: Untold Stories: Life with a Severe Autoimmune Condition
The Great Detectives of Old Time Radio| Daily Mystery Dramas
Adam Graham
4.4 • 2K Ratings
🗓️ 5 March 2024
⏱️ 33 minutes
🧾️ Download transcript
Summary
Introducing Understanding and Acceptance: Being an Active Partner in Your CIDP Treatment from Untold Stories: Life with a Severe Autoimmune Condition.
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Transcript
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| 0:00.0 | This podcast is not intended to provide medical advice. |
| 0:03.7 | Please talk to your doctor about any medical concerns. |
| 0:08.0 | Hi everyone and welcome back to Untold Stories, Life with a Severe |
| 0:14.1 | autoimmune condition. This podcast is a production of Ruby Studio in |
| 0:18.2 | partnership with Argenics and I'm your host Martin Hackett. I'm an |
| 0:21.8 | associate professor and director of public health |
| 0:24.1 | programs at Hofstra University. As a researcher, professor, and public health |
| 0:28.4 | expert, I've spent my career studying the complex realities of health care |
| 0:32.0 | disparities. |
| 0:33.0 | On this podcast, I speak with real people living with severe autoimmune conditions |
| 0:38.0 | to expand the conversation around these shared experiences. |
| 0:42.0 | Every person living with an autoimmune condition |
| 0:45.0 | has a unique story to tell. |
| 0:47.0 | We'll uncover how each journey is unique and powerful, |
| 0:50.0 | exploring how community and care are essential parts of each experience. |
| 0:54.6 | We'll also highlight the importance of self-advocacy and support. |
| 0:58.0 | Today's episode will focus on chronic inflammatory to myelinating polyneropathy or CIDP. You may remember learning about it in season |
| 1:06.3 | one when we heard from Crystal and Scott. CIDP is a neurological condition causing progressive weakness in the arms and legs. |
| 1:15.1 | The immune system attacks the protective layer that surrounds the nerves and the muscles. |
| 1:20.3 | This damage causes nerve signaling to fail, which is why some people with the condition may experience difficulty walking. |
| 1:27.0 | Today's guest, Rory, is an attorney who discovered he had CIDP after experiencing muscle cramps and numbness in his limbs. |
| 1:35.7 | His fatigue was so debilitating that he found it hard to walk or stand. |
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