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🗓️ 13 March 2024
⏱️ 17 minutes
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0:00.0 | What happens when sleep takes over your life? |
0:07.0 | You feel like you just woke up out of the deepest sleep ever, |
0:11.0 | and you're trying to function. There's times I could best describe it as, it hurts to be awake. |
0:16.0 | It's Wednesday, March 13th, and not to worry, it's still Science Friday. I'm Sci-Fi producer Shishana Bucksbaum. |
0:28.0 | For people with idiopathic hypersomia or IH for short, no amount of sleep can shake a profound feeling of |
0:36.4 | sleepiness. People with a disorder can sometimes sleep for over 24 hours, even |
0:41.5 | stimulants and multiple alarm clocks can't keep them awake. |
0:45.3 | IH is rare, just a small fraction of 1% of people receive a diagnosis, and now scientists are doing more research into the condition |
0:55.3 | thanks in large part to patients organizing and advocating for better treatment |
1:00.1 | options but the underlying cause remains unknown. Here's Ira Plato. |
1:06.0 | Joining me now to talk more about it are my guests, Dr. Quinn Eastman, science writer, |
1:11.5 | and author of The Woman Who Couldn't Wake Up, Hypersomnea and |
1:16.2 | The Science of Sleepiness. |
1:18.0 | He's based in Decatur, Georgia, and Anna Kimmel, co-founder of the Hypersomnea Alliance and board member of the Hypersomnea |
1:26.3 | Foundation based in Atlanta, Georgia. |
1:29.1 | Both of you, welcome to Science Friday. |
1:31.3 | Thank you for having us. Thank you very much. |
1:34.0 | You're welcome. |
1:35.0 | Diana, I want to start with the basics. |
1:38.0 | Tell us about what, what is IH? |
1:41.0 | Idiopathic hypersomniaia is a neurological sleep disorder where no matter how much sleep you get, you |
1:47.1 | still will wake up unrefreshed, exhausted, tired, and just in no way ready to face the day. |
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