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TED Talks Daily

Why I speak up about living with epilepsy | Sitawa Wafula

TED Talks Daily

TED

Creativity, Ted Podcast, Ted Talks Daily, Business, Design, Inspiration, Society & Culture, Science, Technology, Education, Tech Demo, Ted Talks, Ted, Entertainment, Tedtalks

4.111.9K Ratings

🗓️ 24 October 2017

⏱️ 9 minutes

🧾️ Download transcript

Summary

Once homebound by epilepsy, mental health advocate Sitawa Wafula found her strength in writing about it. Now, she advocates for others who are yet to find their voices, cutting through stigma and exclusion to talk about what it's like to live with the condition.

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Transcript

Click on a timestamp to play from that location

0:00.0

This TED Talk features mental health advocate, Satawa Wafula, recorded live at Ted Navrobi Idea Search 2017.

0:19.1

I have a confession. I have been in an affair since I was 17 years old. I wish I could talk about

0:31.3

butterflies in my stomach or maps I drew on the ground when I think about this affair, but I cannot.

0:40.5

I wish I could talk about sweet words spoken or gifts that I received from this affair, but I cannot.

0:50.5

All I can tell you about is the aftermath. About days I spent constantly asking,

0:58.0

why, why, why me?

1:04.0

I remember how it all began.

1:06.0

I was in my final year of high school,

1:10.0

and my class had just won in the spot.

1:13.1

So we were singing and dancing and hugging each other.

1:17.6

I went and took a shower, then I went for dinner.

1:21.9

And when I sat down to it, my teeth started chattering.

1:26.8

And so I couldn't put the spoon in my mouth. And I rushed to the

1:30.4

nurse's office. And because I couldn't talk, I just pointed at my mouth. And she didn't know what

1:37.0

was happening. So she told me to lie down. And it worked. After a few minutes, the chattering stopped,

1:43.6

and I was about to dash out.

1:46.3

And she told me, she insisted that I go up to the dormitories to sleep.

1:53.1

Here I was in my final year of high school, just a few months from doing my end of high school exams,

2:00.3

and a few days from doing a set of exams

2:03.6

we call here in Kenya MOOCs, which are somehow meant to gauge how prepared one is for the final

2:10.2

exams. There is no way I was going to sleep and let a set of exams mock me. I went to class, sat down, took my Kenyan history notes,

2:21.5

and there I was down Kenyan coastal town with the great Makate Lili Wamenza, the Grima woman

...

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