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Flash Forward

Vanguard Estates: Living With Dementia

Flash Forward

Flash Forward Presents

Science

4.81.6K Ratings

🗓️ 7 November 2022

⏱️ 37 minutes

🧾️ Download transcript

Summary

In this series, we’re taking a look at some of the real science, policy, economics, law and ethics that inspired the events of Vanguard Estates. Today: what it’s really like living with dementia, and caring for someone who has it? Remember, listen to Welcome to Vanguard Estates first! Guests: Kate Swaffer: activist & author Nikki: care partner & founder of A Log Cabin in Brooklyn → → → Further reading & resources here! ← ← ← Flash Forward is hosted by, Rose Eveleth and produced by Ozzy Llinas Goodman. The intro music is by Asura and the outro music is by Hussalonia. The episode art is by Mattie Lubchansky. Get in touch: Twitter // Facebook // Reddit // [email protected] Support the show: Patreon // Donorbox Subscribe: iTunes // Soundcloud // Spotify Episode Sponsors: Shaker and Spoon — A subscription cocktail service that helps you learn how to make hand-crafted cocktails right at home. Get $20 off your first box at shakerandspoon.com/flashforward. Learn more about your ad choices. Visit megaphone.fm/adchoices

Transcript

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0:00.0

Hello and welcome to Flash Forward and Rose and I am your host.

0:13.4

This is the first of five episodes in which we are going to cover the Real, Science,

0:18.1

Tech, Policy, Ethics, Economics, etc. that inspired the Welcome to Vanguard States series.

0:25.0

So these episodes are going to talk all about the various storylines, which means that

0:28.3

if you have not heard them all and you don't want to be spoiled, you're going to want to wait

0:33.0

to listen through everything first and then come back to these.

0:37.0

Before we talk about the details of the story, I want to say a couple things about the story

0:41.2

itself and the narrator perspective that you heard. So one thing that sometimes surprises me

0:48.1

when I release Flash Forward episodes is that people who listen to the show sometimes assume

0:53.9

that the fictional elements at the top are always positive in the sense that like I'm always

0:59.4

describing how I think things should be or the choices that people should make.

1:04.8

That is not true in this story. Our narrator is presented with a bunch of choices,

1:10.1

many of which kind of suck and the narrator is not always in the right, right? Their point of view

1:16.5

on things is not mine and it isn't the one that I think that everybody necessarily should have.

1:23.2

The idea of the story is to kind of show you a few ways of seeing things and see how those

1:28.9

ways feel when you're sort of forced to live with them and make choices inside that framing.

1:35.5

So one example of this is that in the story, the dead character doesn't actually have a ton of

1:41.8

agency, right? The narrator and their sister make a ton of choices for him and he doesn't really

1:47.2

get to be in charge of his life. And while I would certainly not argue that that is good and

1:53.3

right and how it should be, I do think that that is unfortunately realistic. We're just sufferers

2:00.0

and we're expected to go home and accept that the end is near and that, you know, there's a

2:07.6

gross underestimation of the capacity of all people with dementia and I've been saying that for

...

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