Trikafta: Healing Isn't Always Simple
Sickboy
CBC
4.8 • 524 Ratings
🗓️ 20 August 2024
⏱️ 92 minutes
🧾️ Download transcript
Summary
They say the only constant in life is change, but what happens when the change you're given feels like a double-edged sword? In this episode, the boys sit down with Connie, a young woman whose life with Cystic Fibrosis has taken a sharp turn thanks to Trikafta. She shares the raw realities of navigating a new chapter where her body, mind, and future are all in flux. From the ripple effects of this life-altering drug to the unexpected burden of added years, Connie explores the challenges of redefining herself and seeking community in a world that suddenly feels both more hopeful and isolating.
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Transcript
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| 0:00.0 | What's the connection between being an astronaut and being a novelist? I hadn't really thought about it |
| 0:06.8 | until I talked to the astronaut-turned-writer Chris Hadfield about his new thriller, Final Orbit. |
| 0:13.5 | Every week on the podcast bookends, I sit down with today's best authors for candid conversations |
| 0:18.8 | about their writing, inspirations, and lives. |
| 0:22.8 | You'll get to see the world through the eyes of your favorite writers, and they might even |
| 0:26.6 | take you to outer space too. Bookends with Matea Roach is available now wherever you get your podcasts. |
| 0:34.3 | This is a CBC podcast. |
| 0:46.3 | Music This is a CBC podcast. Okay, folks, this week we have a really, really special conversation. |
| 0:51.8 | We are joined by a good friend, from Montreal who drove to Halifax |
| 0:58.0 | to be in studio with us to record this conversation. Connie lives with cystic fibrosis, |
| 1:02.5 | just like me. And we kind of dive into this conversation about how these days, the next steps that we've been seeing happening with these |
| 1:15.3 | modulator drugs like Tri-Cafta, just how it is having an effect on our day-to-day. |
| 1:24.6 | Outside of just like the way it's totally positively affecting our |
| 1:29.1 | physical selves, we really dive into like how it's kind of fucking with our mental |
| 1:35.2 | selves. And really, I mean, this is just like a really wonderful opportunity for |
| 1:42.0 | me selfishly to be able to sit down and have |
| 1:45.1 | like a one-on-one conversation with somebody else who's in a really similar situation to |
| 1:49.2 | myself. Connie is a eloquent, beautifully smart, wonderful conversationalist and I'm really grateful |
| 2:00.3 | to know her and I'm really grateful to know her. |
| 2:02.3 | And I'm so happy that she was able to come here and have a conversation with the three of us |
| 2:06.9 | because it's just really lovely. |
| 2:09.8 | People in the world like her. |
... |
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