4.5 • 717 Ratings
🗓️ 20 May 2024
⏱️ 4 minutes
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0:00.0 | Three years ago, a young woman with a terminal degenerative brain disease reached out to us, looking for help. |
0:08.9 | Sorry, I'm being recorded. |
0:11.3 | She wanted us to tell her story to the world. |
0:15.0 | Imagine if I drew a line on your feet and you could only feel one side of the other. |
0:19.0 | You just feel a bit sort of wonky. |
0:21.1 | Our producer Ronan travelled to the |
0:22.7 | south-west of Ireland to the small town |
0:24.7 | of Carusivine. To meet with her. |
0:26.7 | When you get diagnosed with Huntington's |
0:28.8 | disease, it's a list of all the things you suddenly |
0:30.7 | aren't allowed to do anymore. This appeared |
0:32.8 | like the story of a brave young woman |
0:34.8 | in a battle for life. |
0:36.8 | For me it just felt like my life suddenly got very, very, very, very small. |
0:42.7 | I'm Carrie Jade Williams. |
0:45.3 | Carrie Jade Williams. |
0:47.4 | Carrie Jade Williams. |
0:49.3 | From once we followed her story, as she prepared for pioneering brain surgery on the other side of the world. |
0:55.7 | Say it's why I've been doing practice runs with drilling noises, you know, because you have to prepare for all of that. |
1:02.1 | But nothing happened. |
1:04.5 | Then, Carrie Jade Williams disappeared. |
1:09.2 | No sign, no word, nothing. |
... |
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