The Path with Becky Quick: Life with a Rare Disease 1/8/26
Squawk Pod
CNBC
4.2 • 543 Ratings
🗓️ 8 January 2026
⏱️ 34 minutes
🧾️ Download transcript
Summary
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| 0:00.0 | This was not even something I thought I could talk about. |
| 0:05.0 | I want to say it was the first birthday party. |
| 0:07.0 | It felt like awake. |
| 0:08.0 | How do I give her the best possible life? |
| 0:10.0 | Does this mean that she's going to die? |
| 0:13.0 | If she can just walk, if she can just talk, if she can just find a friend. |
| 0:32.4 | I'm Becky Quick. I've spent the last 25 years on camera at CNBC, covering the people, |
| 0:35.6 | the politics, the highs and lows of American business. |
| 0:37.5 | Good morning, everybody. Welcome to Squawk Box right here on CNBC. |
| 0:40.1 | Let's take a look at what's been happening with the U.S. Equity Futures. |
| 0:42.7 | But there's another part of my life. |
| 0:45.4 | Actually, it's the best part. |
| 0:49.8 | Bye. |
| 0:53.4 | I'm a mom to a child with a rare disease. |
| 0:56.5 | There are fewer than a couple thousand people in the world like her. |
| 1:00.3 | And my own story, my family's story, is one that I never thought I would tell. |
| 1:06.2 | It's taken me years to get here. |
| 1:10.4 | Music me years to get here. |
| 1:21.5 | This is The Path, a podcast series about the hidden world of rare disease. |
| 1:29.4 | I say hidden because there are thousands of potential conditions, diseases, disorders, illnesses, lurking in our genes hidden in the basic code that makes us who we are. These are misdirections and |
| 1:35.3 | neuro pathways, deficits of critical proteins or enzymes, genetic typos, if you will, |
| 1:41.2 | countless ways that biological chance can change our health or change our lives. |
... |
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