The Cystic Fibrosis Miracle Drug w/ Stephanie Stavros

Sickboy

CBC

Society & Culture

4.8 • 524 Ratings

🗓️ 16 November 2020

⏱️ 90 minutes

🔗️ Recording | iTunes | RSS

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Summary

Last week was a massive day for the Cystic Fibrosis community. With the announcement of Vertex planning to submit Trikafta to Health Canada for approval there was much to celebrate, but the hard work isn’t done yet! This week we speak with Stephanie Stavros, the first Canadian CF’er who was granted special access to Trikafta as she was laying on death's door. Stephanie has an absolutely wild story of growing up with CF totally in secret. As 30+ some years of a closeted salty girl she saw some serious ups and downs. From spewing blood on a first date to becoming the mother of her own child, her story is incredible.

Transcript

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0:00.0	I'm Lisa Yuso, a digital producer at Ideas, the podcast that likes to feed your curiosity.
0:07.8	I ask my colleagues why they think you should listen.
0:11.8	Ideas can make you the smartest, most interesting guest at your next dinner party in less than 60 minutes.
0:18.7	It's got the best of a storytelling podcast
0:21.2	with the best of a great lecture.
0:23.6	You can pretty much never predict
0:25.4	where an episode will take you,
0:27.0	but you can count on every episode
0:29.0	to shift your perspective,
0:30.9	even just a little.
0:32.4	Find and follow ideas
0:33.7	wherever you get your podcasts.
0:39.7	This is a CBC podcast.
0:46.0	All right.
0:50.9	Okay, so a little bit of a lay of the land here.
0:56.8	Before we get to today's recording, I think we here at Sick Boy Podcasts would be doing you a disservice if we didn't take a moment before the recording to touch on the, the news that was released
1:15.4	last Monday, a week ago from today, about the latest surrounding TriCafta and TriCafta
1:25.9	becoming a possibility of being approved here in Canada.
1:31.7	Today's episode, which I am so fucking elated to get to, is with our friend Steph.
1:38.3	Steph, you are with me right now.
1:39.9	I am. I'm here.
1:41.6	And we thought we would take a moment to kind of like give a bit of an explanation to folks about the news that came out last Monday.
	...

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