Chris Branagan and his seven-year-old daughter, Hasty, are on their way to the doctors.

We drove there in the car and we're chatting, you know, and having fun.

It's a quick pit stop before the big family camping trip he's been planning for months.

And I got there expecting to be sort of asked, you know, how's things going, any updates, how's Hasty speaking.

A routine checkup, like the ones they had every year.

But instead I walked in and sat down and she said,

we can confirm to you now that Hastie has CDLS.

A life-threatening genetic illness with no treatment or cure.

To be called by surprise on a Thursday morning and told that your daughter has this really rare genetic condition,

which means that it's life shortening, that is life limiting.

You know, the ground opened up underneath me and just swallowed me.

Chris is now faced with an incurable disease that robs children of their independence before they hit puberty.

And a choice.

Does he fight to reimagine his daughter's future or accept her decline as inevitable?

I'm Ian Wright, and this is everyday people.

Your country's in big trouble.

The world is a pretty confusing place right now.

How long have you known about Andrew and X?

I'm Neil Patterson, and after 20 years reporting and presenting for Sky News, one thing's

become clear.

People don't just want to know what's happened.

They want to know why.

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