Simone's Story: The Hidden Illness That Stole Her Organs

The Medical Detectives

Soft Skills Media

Society & Culture, True Crime

3.6 • 711 Ratings

🗓️ 26 February 2025

⏱️ 46 minutes

🔗️ Recording | iTunes | RSS

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Summary

In this gripping episode of The Medical Detectives, we sit down with Simone, whose harrowing medical journey took her from being an active, adventurous athlete to navigating years of misdiagnoses, medical gaslighting, and life-altering surgeries. What started as severe menstrual pain turned into a baffling cascade of symptoms—black tar-like bleeding, debilitating cyst ruptures, and chronic pelvic pain—that left her searching for answers in a system that dismissed her concerns for years.

Simone recounts how her symptoms escalated while living out of her van, forcing her to become her own advocate as she bounced between gynecologists, emergency surgeries, and specialists. After undergoing multiple procedures, including a hysterectomy and the removal of her left ovary, the real cause of her suffering was finally uncovered: Nutcracker Syndrome, a rare and underdiagnosed vascular compression disorder.

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All discussions are general in nature and may not apply to your specific health situation. Always seek the advice of a qualified healthcare professional before making any medical decisions or taking any action based on the content of this podcast. Never disregard professional medical advice or delay seeking treatment because of something you have heard on this show

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Transcript

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0:00.0	This episode spoke to me a lot because our guest, Simone, literally reminded me how important
0:19.4	it is to just find the positivity of the situation.
0:26.7	I feel like you're all going to feel her energy immediately.
0:30.3	She was like a ray of sunshine.
0:32.5	And I think it's a different energy than I think we've ever had on the podcast in terms of like perspective.
0:39.6	And I think it was not just positivity, but realness to that positivity in that it's not just
0:47.0	pretending like things are great. You know, sometimes it's acknowledging things that are really hard
0:53.2	and really suck, but it doesn't mean that you
0:56.4	have to stay in that place and that you can continue to support yourself and love yourself
1:02.5	through those really hard periods. Exactly. And I would say especially like taking the
1:08.5	moments where you can create a little joy for yourself and doing it, even
1:12.8	though it may feel a little silly or like, why am I doing this? Because you need it, right? Because
1:18.8	you need it.
1:24.1	Hi, Simone. Welcome to the medical detectives. Hello. How are you all doing? Welcome. You excited to tell your story? Yeah, I'm stoked to tell my story. I've been, from the start of all of this, I was very much like, okay, how can I use my story to help others? Because the juicier it got, the more I was like, there's some
1:45.9	nuggets in here that I think can serve other people. Oh, I love nuggets in any form, educational,
1:52.5	chicken-based. Yeah. Yeah. You know, if it's a nugget, I'd probably like it. Same, same.
1:59.3	Well, Simone, can you start us off with what was life like for you when you were
2:06.5	younger? Very, very active. I was an athlete. That was probably my number one identity. So I was playing
2:13.5	most every sport. I used to find joy out of, I would go outside and I would run laps around the house.
2:20.5	So I was very, very active.
2:22.4	So I very active and healthy throughout that time?
2:27.0	Yeah, other than my period.
	...

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