Sherry Julo, Ed White and John Read – Online Support Groups for Psychiatric Drug Withdrawal
Mad in America: Rethinking Mental Health
Mad in America
4.7 • 212 Ratings
🗓️ 13 March 2021
⏱️ 52 minutes
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Summary
This week on the MIA podcast, we discuss a recent paper that considers the support provided by online support groups when people seek help for psychiatric drug withdrawal. The paper is entitled 'The role of Facebook groups in the management and raising of awareness of antidepressant withdrawal: is social media filling the void left by health services?' It was published in the journal Therapeutic Advances in Psychopharmacology in January 2021 and the authors are Sherry Julo, Ed White and John Read.
"In June 2020, the groups had a total membership of 67,125, of which, 60,261 were in private groups. The increase in membership for the 13 groups over the study period was 28.4%. One group was examined in greater detail. Group membership was 82.5% female, as were 80% of the Administrators and Moderators, all of whom are lay volunteers. Membership was international but dominated (51.2%) by the United States (US). The most common reason for seeking out this group was failed clinician-led tapers."
Links and further information
Facebook Groups Provide Psychiatric Drug Withdrawal Help When Doctors Don't
Out of the Abyss (with a Little Help from My Friends)
Antidepressant Withdrawal: Avoid Doctors?
Tens of Thousands Relying on Social Media Support Groups to Withdraw From Antidepressants (video)
Transcript
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| 0:00.0 | Welcome to the Mad in America podcast, your source for science, psychiatry and social justice. |
| 0:13.4 | Hi, this is James and welcome to the podcast. And this week we discuss a recent paper that considers the support provided by online support |
| 0:23.5 | groups when people seek help for psychiatric drug withdrawal. |
| 0:27.7 | The paper is entitled The Role of Facebook Groups in the Management and Raising of Awareness |
| 0:33.2 | of Antidepressant Withdrawal. |
| 0:35.1 | Is social media filling the void left by health services? |
| 0:39.4 | It was published in the journal Therapeutic Advances in Psychopharmacology in January |
| 0:44.5 | 2021, and I'm really pleased to be joined by all three authors. A little later, we will talk |
| 0:51.5 | with Professor John Reed and Dr. Ed White, but first, I got time to talk with Sherry Julo. |
| 0:57.5 | Sherry is the administrator of a large online FX-Or withdrawal group on Facebook, and she took time out to talk about what led her to start the group in 2013. |
| 1:09.6 | Sherry, thank you so much for chatting with me today for the podcast. |
| 1:13.6 | And I want to go on to ask a little bit about your thoughts as the moderator of a large |
| 1:19.6 | Facebook withdrawal support group. But before we get to that, I know that you've had |
| 1:25.6 | personal experience yourself of difficult withdrawal. So I wanted |
| 1:30.6 | to ask you if you could share a little bit about what you went through. Well, my doctor had |
| 1:36.1 | tapered me off too fast off of a fixer. They wouldn't listen to what I was enduring, my withdrawal symptoms, which at the time I did not even know they were withdrawals. I didn't even know you could have withdrawals from antidepressment. |
| 1:56.1 | My symptoms were so horrific that I was so desperate. I didn't know where to turn except my computer. |
| 2:07.4 | And when I decided I would try to do a Facebook group, and I actually had to have an admin from another group walked me through how to set it up |
| 2:19.0 | because I had no clue how to do it. |
| 2:21.8 | And this was, this was 2013, is that right? |
| 2:24.8 | Correct. |
| 2:25.5 | Next month will be eight years. |
... |
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