Political Gabfest - Gabfest Reads: Invisible Kingdom: How Meghan 0'Rourke became a detective of her own illness.
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3.9 • 1.1K Ratings
🗓️ 22 March 2022
⏱️ 26 minutes
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Summary
Emily Bazelon talks with author Meghan O’Rourke about germ theory, biomarkers, medical mysteries, long COVID and the quest to return to health as chronicled in her new book The Invisible Kingdom: Reimagining Chronic Illness.
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Transcript
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| 0:00.0 | This month, I am so pleased to welcome Megan O'Rourke to GabFest Reeds. |
| 0:12.4 | Megan has written a really engrossing book called The Invisible Kingdom. |
| 0:18.0 | The subtitle is Reimagining Chronic Illness. |
| 0:23.1 | This is a book about a silent epidemic of chronic illnesses that afflict tens of millions of Americans. Often the diseases |
| 0:29.3 | that Megan is writing about are poorly understood and frequently marginalized and undiagnosed |
| 0:35.3 | altogether. It's a harrowing book because of the subject matter, |
| 0:40.5 | but it's not at all harrowing to read. I actually found it to be kind of a page turner. |
| 0:45.2 | And because Megan is a poet, an incredibly discerning reader, it's infused with beauty and joy |
| 0:51.3 | from literature about all kinds of topics. So, Megan, you're investigating this |
| 0:56.9 | elusive category of, quote, invisible illness, autoimmune diseases, post-treatment Lyme disease |
| 1:03.8 | syndrome, and now long COVID. Just tell us a little bit about how this began for you. |
| 1:12.6 | First of all, thank you so much, Emily. This is one of the first times I'm hearing my book described by a reader, and it's so |
| 1:16.9 | illuminating, actually, because I think I really worried that this would be a book characterized |
| 1:22.5 | by the narrative of chronic illness, which is recurrent and repetitive, right? |
| 1:27.1 | So I did work really hard |
| 1:28.3 | to try to give it a shape, and I'm in a strange way pleased to hear that it's a harrowing |
| 1:34.0 | page turner. But the book began for me, I think, in that experience of being in the grips |
| 1:41.8 | of a melez I had no name for. My experience of getting sick was one that |
| 1:48.0 | happened slowly over time and not dramatically. I opened the book by comparing it to Hemingway's |
| 1:53.5 | description of going broke gradually and then suddenly. So it was a little bit like someone walking |
| 1:59.5 | slowly into ever deeper water. I just didn't feel |
| 2:02.2 | great. I had strange symptoms, you know, headaches, brain fog, strange bouts of fatigue. But over |
... |
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