One In A Million: Caroli's Disease

Sickboy

CBC

Society & Culture

4.8 • 524 Ratings

🗓️ 31 January 2021

⏱️ 60 minutes

🔗️ Recording | iTunes | RSS

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Summary

Buckle up kids! This week we dive into the fascinating experience of living with an ultra rare disease known as Caroli's! Otherwise known as Congenital polycystic dilatation of intrahepatic bile ducts. Oh yeah. Bile. No shortage of gnar. Marcy gives us the run down on "Bile Bags", Losing over half her Liver, and stones. Stones on stones on stones.

Transcript

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0:00.0	I'm Lisa Yuso, a digital producer at Ideas, the podcast that likes to feed your curiosity.
0:07.8	I ask my colleagues why they think you should listen.
0:11.8	Ideas can make you the smartest, most interesting guest at your next dinner party in less than 60 minutes.
0:18.7	It's got the best of a storytelling podcast
0:21.2	with the best of a great lecture.
0:23.6	You can pretty much never predict
0:25.4	where an episode will take you,
0:27.0	but you can count on every episode
0:29.0	to shift your perspective,
0:30.9	even just a little.
0:32.4	Find and follow ideas
0:33.7	wherever you get your podcasts.
0:39.8	This is a CBC podcast.
0:45.4	Welcome to Sick Boy, a podcast that talks about what it's like to be sick.
0:49.5	This week's guest is Marcy.
0:51.1	She has Corolli disease.
0:53.2	Let's talk about it.
1:02.0	Yeah. guest is Marcy. She has Corolli disease. Let's talk about it. You know what I am excited to talk about though? Well, we're sitting here with our,
1:06.0	not so new friend Marcy because we've met before at a bitch-in-C-F fundraiser event in Toronto.
1:15.0	CF Canada put on an event called Homecoming.
1:19.4	Was that with the bus?
1:21.1	Yeah, man.
	...

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