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On Health

On Invisible Illness: Living at the Edge of Medical Knowledge with Meghan O’Rourke

On Health

Aviva Romm

Health & Fitness, Arts, Alternative Health, Medicine

4.81.4K Ratings

🗓️ 1 March 2023

⏱️ 63 minutes

🧾️ Download transcript

Summary

From chronic fatigue to Lyme’s disease to COVID to autoimmune conditions, "invisible" illnesses and those who suffer from them are often disbelieved. It's often a struggle to receive a diagnosis, and more often than not, sufferers do not receive the adequate care they need. Lack of knowledge and understanding from medical providers may lead women to remain silent and hide their suffering, live with persistent symptoms, as well as facing isolation, depression, and anxiety. So where does one even start if suffering from an invisible illness and how does one begin the journey towards reclaiming your own life? Tune into today’s episode of On Health to find out My guest today, Meghan O'Rourke, is the author of the New York Times bestseller and absolute must-read, The Invisible Kingdom: Re-Imagining Chronic Illness. In her twenties, Meghan began suffering from mysterious symptoms ranging from crushing fatigue to rashes to strange neurologic symptoms. The decade long search for a diagnosis led her down a long path of discoveries about conventional, integrative alternative medicine - and herself! Her book and wisdom is a healing balm for anyone struggling with or who loves someone with chronic disease. In this episode, we discuss: What an invisible illness is, and some of the most common known conditions for which women are most commonly dismissed Meghan's journey of seeking a diagnosis and treatment for a constellation of symptoms while redefining her sense of self as someone with an invisible illness. Medical gaslighting, self-gaslighting, and gender as obstacles to women receiving proper medical care The role online groups and alternative medicine played in finally getting a diagnosis Why it's so important to deeply trust her your body and learn to discern is -- and isn'tt -- working for you from medical interactions to conventional and alternative therapies Non-negotiables for living well, and navigating work and motherhood, with a chronic condition The impact of long-COVID on raising awareness and changing the cultural and medical narrative about chronic, invisible illnesses How to advocate for yourself in conventional medicine and integrative wellness Many of you listening will find yourself in Meghan story. I hope this interview and her book give you a feeling of being less alone and remind you of the need for compassion for yourself or those in your life. Thank you so much for taking the time to tune in to your body, yourself, and this podcast! Please share the love by sending this to someone in your life who could benefit from the kinds of things we talk about in this space. Make sure to follow your host on Instagram @dr.avivaromm and go to avivaromm.com to join the conversation. Follow Megan @meghanor and grab a copy of her book at meghanorourke.com.

Transcript

Click on a timestamp to play from that location

0:00.0

I just wish I could go back in time and say, listen to yourself, you know, I get asked

0:09.3

all the time, what should I do, what should I tell someone, listen to yourself.

0:13.8

I had been acculturated and raised in a patriarchal culture that taught me not to listen to

0:19.4

my own needs, I wish for everyone that we could listen to our own needs.

0:27.3

From this stuff your mother never told you, to this stuff your doctor never learned.

0:31.5

On health is what happens when a midwife, plus a Yale-trained MD, shares about all things

0:36.6

women's health.

0:37.9

From periods to menopause, sex to reproductive health politics, motherhood to mental health,

0:43.3

join me for taboo-busting conversations that demystify and destigmatize our bodies, all

0:49.1

while bridging the gap between conventional medicine and wellness.

0:52.7

Along the way, we'll be exploring the science and wisdom of how our bodies work, what makes

0:57.1

us well, what gets in the way and how we can live our best lives on our terms.

1:02.7

When it comes to women's health and well-being, there's nothing we won't talk about.

1:06.5

The new medicine for women is here, I'm Dr. Avivaram and welcome to the podcast.

1:18.6

My guest today, Megan O'Rourke, is the author of the New York Times bestseller, The Invisible

1:24.0

Kingdom, reimagining chronic illness, which was a finalist for the 2022 National Book

1:30.0

Award in Nonfiction.

1:32.0

She is also the author of The Memoir, The Long Goodbye, a book about grieving the loss

1:36.3

of her mother, as well as the poetry collections, Sun in Days, Once and Half Life.

1:42.3

Her writing has appeared in the Atlantic Monthly, New Yorker and New York Times and more.

1:47.6

The recipient of a Guggenheim Fellowship and a Whiting Nonfiction Award, she resides

1:52.2

in New Haven, where she teaches at Yale University.

...

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