"My Tongue is Shedding" | Refractory Myasthenia Gravis
Sickboy
CBC
4.8 • 524 Ratings
🗓️ 11 February 2026
⏱️ 74 minutes
🧾️ Download transcript
Summary
What do you do when your own tongue starts "shedding" like a snake and your doctor tells you to just "eat a banana"? Imagine waking up and seeing the world through 90s TV static, while your muscles literally stretch and tear like gum when you yawn. Làyla joins the boys to break down the reality of living with Refractory Myasthenia Gravis (MG), a version of the illness so stubborn it requires constant infusions just to keep her stable. From the terrifying moment she realized her jaw was atrophying, to the bizarre neurological world of Visual Snow Syndrome, Làyla shares it all with a level of humor and confidence that is honestly infectious.
You can watch this entire episode over on YouTube: https://www.youtube.com/playlist?list=PL0EVgIbBQOxtKJ4qjAlfeutzZRfCGV8nb
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Transcript
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| 0:00.0 | It's becoming pretty clear that U.S. President Donald Trump is ripping up the political |
| 0:05.3 | playbook. |
| 0:05.8 | And when it comes to what it all means for Canada, well, as they say, it's complicated. |
| 0:09.8 | But our podcast, two blocks from the White House, is a way to make sense of it all. |
| 0:13.8 | Join me, Willie Lowry, and senior Washington correspondents, Paul Hunter and Katie Simpson |
| 0:18.6 | every week as we break down the headlines from Capitol Hill with a Canadian spin. |
| 0:24.2 | Find and follow two blocks from the White House on your favorite podcast app, including YouTube. |
| 0:30.3 | This is a CBC podcast. |
| 0:33.2 | It's going to sound so gross, but the muscle in here had actually started to atrophy. |
| 0:38.9 | And so I remember yawning one day. |
| 0:41.3 | I could feel my muscle stretch and tear almost like gum. |
| 0:45.4 | Oh. |
| 0:45.9 | And it was so horrifying. |
| 0:49.0 | Ouch. |
| 0:49.8 | And, and then I looked in the mirror and I stick my tongue out. |
| 0:53.6 | And my tongue was actually shedding, like pieces, like pieces of my tongue out and my tongue was actually shedding. |
| 0:55.8 | Like pieces of my tongue was shedding. |
| 0:58.0 | I'm like the muscle atrophy of my tongue. |
| 0:59.8 | Whoa. |
| 1:00.7 | This is literally like a like a body horror scene in a movie. |
| 1:05.5 | Like this substance. |
| 1:06.5 | Yeah. |
... |
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