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The Story

My daughter died of ME. I had to fight the NHS for answers

The Story

The Times

Daily News Podcast, Exclusive Interviews, Daily News, Current Affairs, Global News, News, Investigative Reporting, Long-form Audio, In-depth Journalism, Audio Storytelling, News Analysis, Politics, Uk News

3.91.6K Ratings

🗓️ 28 October 2024

⏱️ 54 minutes

🧾️ Download transcript

Summary

  • When Sean O’Neill’s daughter Maeve died aged 27 from malnutrition caused by severe ME - myalgic encephalomyelitis - he faced years of waiting for an inquest to find out why the system failed her. That inquest has just ended, but will its ground-breaking conclusion change things for the hundreds of thousands of ME sufferers in the UK?

This podcast was brought to you thanks to the support of readers of The Times and The Sunday Times. Subscribe today: thetimes.com/subscribe

Information and helpline services for ME are available at Action for ME and The ME Association.


Guest: Sean O’Neill, Maeve Boothby O’Neill’s father and Senior Writer, The Times.

Host: Manveen Rana.

Producer: Olivia Case.

Image credit: O'Neill family.

Further reading:

Get in touch: thestory@thetimes.com 


This podcast was brought to you thanks to subscribers of The Times and The Sunday Times. To enjoy unlimited digital access to all our journalism subscribe here.


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Transcript

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0:00.0

Hello I'm Holly Mead and with me is Lucy Andrews and we are both from the Money Team at The Times and Sunday Times.

0:07.0

And our new podcast is called Feel Better about Money.

0:11.0

It's a safe place to talk positively about money and personal finance.

0:15.0

Each week we will tackle a specific financial topic from managing debt, saving for a pension,

0:21.0

buying a house or deciding whether to insure your cat or dog or goldfish.

0:25.0

Feel Better About Money is sponsored by Lloyd's Ready Made Investments.

0:30.0

The Times Tech Podcast sponsored by Service Nell.

0:34.0

A podcast presented from San Francisco and from London.

0:37.0

Each week a fresh interview with pioneers in tech from the brightest startups

0:40.0

to the tech giants.

0:42.0

That's The Times Tech Podcast. Where Danny in the Valley, that Silicon Valley, meets me,

0:46.3

Katie, in the city, the City of London.

0:48.8

Exploring how tech is changing life and business in this new world of artificial intelligence.

0:54.3

The Times Tech Podcast with Katie Prescott and Danny Fortin.

0:57.8

Follow us now wherever you get your podcasts. us. I think one of my most cherished memories is not a single memory it's just the

1:22.1

relationship may have had with my mum. I remember turning up in

1:26.0

Ireland to visit her one time and maybe it was about four at the time. My mum ignoring me and May have was about four at the time. My mom, ignoring me and May have's mom

1:35.0

and May have strolled up the path to her granny's arms

1:38.0

and, you know, they just really bonded in a way.

1:42.0

That was so, so special special and May have was named after us is May

1:45.8

of Bernadette and I do I remember them running around a beach in Donnie Gaul and

1:52.0

having a great time together and may have asking my

...

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