"My Brain is Draining Into My Stomach" | Spina Bifida
Sickboy
CBC
4.8 • 524 Ratings
🗓️ 31 March 2026
⏱️ 59 minutes
🧾️ Download transcript
Summary
What do you do when your spine decides to "leak" before you're even born, leaving you with a "jizzy back rat" and a tube running from your brain to your belly? We’ve covered Spina Bifida before, but never quite like this. Meet Joshua, a man who has spent 48 years navigating the world from a wheelchair and dealing with an exposed spine. AKA Spina Bifida. The fellas get up close and personal with the medical realities of "leaky" spines and the surgical interventions that happen before a baby even hits the delivery room. The wildest part? Joshua can throw a spear further than all of us. We also dig into Joshua's experience in navigating a long distance marriage, and it's adorably heartwarming.
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Transcript
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| 0:00.0 | All right, I got a big question. How do you feel about aging? Maybe you've got a fear of death, fear of the unknown, fear of change. |
| 0:06.8 | Because certainly how we look starts to change. The actor Amanda Pete has given it a lot of thought over the years. She's been in the public eyes since the 90s. |
| 0:14.5 | She'll tell you why her new film, Fantasy Life has her thinking about validation, about vanity, and what she thinks about cosmetic surgery and |
| 0:21.8 | whether or not to get it. |
| 0:23.4 | You'll hear that conversation now. |
| 0:25.0 | Just search for Q with Tom Power, wherever you get your podcasts. |
| 0:30.1 | This is a CBC podcast. |
| 0:40.7 | So, Joss, tell us about your jizzy back rat. |
| 0:46.9 | Well, that is not how I've heard it described before, but it works. |
| 0:50.6 | The way I tend to describe it is sort of like a telephone line. |
| 0:53.0 | It's got a coating around the outside of it. |
| 0:56.1 | Part of that coating just doesn't seal properly. |
| 1:03.7 | And so part of your spine or just the spinal fluid will actually leak out. And it does form a sack on the back of the person that has it. In my case, there's a sack and there's fluid inside. |
| 1:09.9 | In more severe cases, spine is actually exposed. I know |
| 1:13.3 | people who have who have had to have large lesions closed because basically their entire spine is |
| 1:19.8 | visible. What's up everyone? Welcome back. Another episode of Sick Boy. And today we are hanging out with our friend Joshua. And as you're about to find out, this conversation goes places that we definitely didn't see coming. Joshua's been living with Spina Bifida. He's had this for 48 years of his life. |
| 1:45.2 | And he's an incredible para athlete. |
| 1:47.7 | We're talking javelin, discus. |
| 1:51.0 | He's a goalie in para ice hockey. |
| 1:54.4 | And he also shares with us a pretty interesting little test of his marriage involving a broken hotel bath bench and a very |
| 2:03.7 | unflattering position on the shower floor. Joshua is a lovely human. He's an account |
| 2:11.2 | manager, a husband, and he's also the co-host of his long running podcast, the Neutral Zone, who he co-hosts with our very good friend, |
... |
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