Legally Blind or Faking It? - Retinitis Pigmentosa
Sickboy
CBC
4.8 • 524 Ratings
🗓️ 23 April 2024
⏱️ 70 minutes
🧾️ Download transcript
Summary
Sometimes, the world we see isn't just defined by light and shadows, but by the stories we tell and the voices we hear. Mara Hutchinson offers the fellas a candid glimpse into her life with Retinitis Pigmentosa (RP), a rare eye disease that affects the retina. She’s lived a journey marked not just by challenges but also by profound resilience. Mara delves into how navigating the world with a white cane (or white stick, depending who you ask) is more than an exercise in mobility—it's a statement of independence and identity. In the wrap, the boys keep the visual disorders going with prosopometamorphopsia. If Picasso was a sociopathic god who designed people, he might have envisioned something like “propsy” as Jer puts it.
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Transcript
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| 0:00.0 | What's the connection between being an astronaut and being a novelist? I hadn't really thought about it |
| 0:06.8 | until I talked to the astronaut-turned-writer Chris Hadfield about his new thriller, Final Orbit. |
| 0:13.5 | Every week on the podcast bookends, I sit down with today's best authors for candid conversations |
| 0:18.8 | about their writing, inspirations, and lives. |
| 0:22.8 | You'll get to see the world through the eyes of your favorite writers, and they might even |
| 0:26.6 | take you to outer space too. Bookends with Matea Roach is available now wherever you get your podcasts. |
| 0:34.3 | This is a CBC podcast. All right, folks, this week, we chat with a 41-year-old mother named Mara, who is a TV reporter and a disability advocate who is legally blind. |
| 1:00.1 | Lovely conversation. |
| 1:01.6 | She's an absolute sweetheart, and we had a blast speaking with her. |
| 1:05.4 | And then after that, the boys and I sit down and we talk about something very trippy. |
| 1:09.8 | It's called, here we go. Proso,Pometamorphor... Fah! Proso-pometamorphosis. Ah! Proso-Pometamorphosia. Enjoy. Enjoy. Thank you. enjoy I never really get a chance to see what goes on behind cameras. |
| 1:38.6 | Usually when I do podcasts, it's already straight to like the host is already sitting all proper. |
| 1:45.2 | I was going to say you don't often get a chance to see much, but I guess we'll |
| 1:49.2 | no, I don't. |
| 1:50.9 | But I know, but you know what? |
| 1:52.6 | You'll be fucking surprised at what I see. |
| 1:56.9 | I see things that's like my husband doesn't even see it. |
| 2:00.2 | I'm like, trust me. I know it's fucking there, okay? Sounds like my mom. I'm a mom. I saw that. I'm like, what the thing? I'm probably older than all of you guys. I'm a mom. You don't look older than us? Well, yeah. I'm pretty sure I'm older than you guys. |
| 2:18.4 | I feel like you guys are young kids. |
| 2:20.5 | I know that you are because I know you wrote in your bio how old you are. |
| 2:25.6 | Oh, yeah. |
| 2:26.2 | I'm guessing 72, 74. |
... |
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