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Kind World

Kids Fuel Scientific Breakthrough

Kind World

WBUR

Kindness, Society & Culture, Profound, Personal Journals, Uplifting, Stories

4.71.4K Ratings

🗓️ 10 June 2019

⏱️ 13 minutes

🧾️ Download transcript

Summary

Six years ago, Dylan Siegel thought of a way to help his friend living with a rare liver disease. Now, his idea is funding life-changing scientific research.

Transcript

Click on a timestamp to play from that location

0:00.0

Produced by the I-Lab at W-B-U-R, Boston.

0:09.0

Welcome to Kind World.

0:11.0

I'm Andrea Aswahueh. And I'm Yasminammer. This week we're going to throw it back to one of our favorite

0:17.4

episodes from 2016. It's the story of two friends, two young boys, and their determination to do something that seems

0:25.2

almost impossible.

0:27.3

Make sure to stay tuned after the break for an update on what happens next.

0:31.2

Now, here's the story. I have to take off my shoe and I break myself and

0:38.6

blood comes out. It's my blood sugar tester.

0:42.7

Sometimes it's kind of like annoying

0:45.0

when kids just stare because they just don't know what it's about.

0:49.5

That's Jonah Purnizarian.

0:51.8

His classmates don't fully understand the liver disease he has that could be fatal.

0:57.0

But Jonah's friend, Dylan Siegel, responds differently.

1:00.0

Dylan, like, he doesn't really really stare he just talks to me and we just laugh together

1:06.7

and it's really fun.

1:10.3

Dylan is nine years old now but this story starts three years ago when the boys were in first grade.

1:16.2

Dylan's mom, Deborah Sekel, was driving her son home from Jonah's house,

1:20.4

when she explained

1:25.0

explained there was no cure and doctors needed money to find one.

1:29.0

I'm like, oh my God, I want to help.

1:31.0

And I said, great, I love that. Do you want to do a bake sale? Do you want to do a lemonade stand? He's like, no. He looked

1:37.4

to me like I was insane. What horrible ideas? Later that night I was putting him to

...

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