Katie & Steve's Story Part 2: The Wife Who Wouldn't Give Up
The Medical Detectives
Soft Skills Media
3.8 • 937 Ratings
🗓️ 13 August 2025
⏱️ 82 minutes
🧾️ Download transcript
Summary
A love story becomes a masterclass in advocacy. In this gripping part two, Katie takes us inside life with a rare brain disease, and shows how fierce care, ingenuity, and impossible choices collide with a messy healthcare system. You’ll hear the moments that test a marriage, what really happens at end of life, and how one night’s escalation changes everything. Most importantly, you’ll leave with hard-won wisdom of how to protect dignity in hospice, what to ask about palliative sedation, and how to advocate without losing yourself. Come for the story; stay because it might change how you show up for the people you love.
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Transcript
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| 0:00.0 | Hello, Erin. How are you doing? |
| 0:11.4 | I'm doing great. I am just waiting with Bated Breath to finish the rest of our episode. |
| 0:18.6 | I know. This is such a great story. And if you're new here and haven't been |
| 0:23.4 | listening along to the first episode, this is part two of Katie and Steve's story. Now, Katie and |
| 0:28.8 | Steve were this lovely couple. They fell in love. And after about 20 years of marriage, Steve started |
| 0:34.8 | experiencing some issues. So he had some eyesight challenges, |
| 0:38.8 | some handwriting challenges, and even some balance issues. And this led to a whole host of |
| 0:43.9 | misdiagnoses, things from carpal tunnel to even just being told it was stress, which was relieving |
| 0:49.8 | to hear that men also get told it's just stress. Or just aging. |
| 0:55.5 | Or just aging. |
| 0:56.4 | Yeah, you're just getting older. |
| 0:57.6 | And even Parkinson's at one point, but what it eventually ended up being was a condition |
| 1:02.4 | called PSP. |
| 1:03.5 | Now, Aaron, for those listening for the first time, can you just give us a high level |
| 1:07.0 | overview of what PSP is? |
| 1:09.8 | Yeah, so PSP is short for progressive super nuclear palsy, which the name implies something |
| 1:16.9 | wrong with the eyesight and progressive meaning getting worse over time and then palsy |
| 1:21.5 | affecting your your muscles and your movement and your balance. |
| 1:25.2 | So with Steve, he had issues with falls. He had issues with |
| 1:28.7 | he couldn't see things in the corners of his eyes. And this is, again, a very rare disease. |
| 1:35.7 | But something if someone was able to connect all the dots, you could come up with this diagnosis. |
| 1:42.2 | At the end of the last episode, we left off where we heard |
... |
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