Jeremie's Lungs Let Him Down & The CF Miracle Drug

Sickboy

CBC

Society & Culture

4.8 • 524 Ratings

🗓️ 18 November 2019

⏱️ 85 minutes

🔗️ Recording | iTunes | RSS

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Summary

Jeremie is finally out of the hospital and gives us a full recap of how his lungs decided to crap out on him while on a small vacation down in Boston. From terrifying his young nurse to full-on anxiety attacks to the nasty sounds of Picc lines there are tons of things to dig into. Then the fellas have a very real and very important conversation with Kim Steele -director of government and community relations from CF Canada - about Trikafta, a new disease-modifying therapy that treats the most common CF genetic mutation. This life-changing med exists, but to get it in the hands of Canadians who need it is a challenge, to say the least.

Transcript

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0:00.0	It's becoming pretty clear that U.S. President Donald Trump is ripping up the political
0:05.3	playbook.
0:05.8	And when it comes to what it all means for Canada, well, as they say, it's complicated.
0:09.8	But our podcast, two blocks from the White House, is a way to make sense of it all.
0:13.8	Join me, Willie Lowry, and senior Washington correspondents, Paul Hunter and Katie Simpson
0:18.6	every week as we break down the headlines from Capitol Hill with a Canadian spin.
0:24.2	Find and follow two blocks from the White House on your favorite podcast app, including YouTube.
0:30.3	This is a CBC podcast.
0:43.5	Hey folks, Jeremy here from the Sick Board podcast. I want to just put a quick little announcement at the top of this episode by saying we have a, this episode, spoiler alert, is partly
0:52.7	the story of what happened to me.
0:55.1	I'm now out of the hospital.
0:56.3	I'm doing much better.
0:57.5	So we talk about my hospital experience.
0:59.4	But at the tail end of this episode, we have a very, very important conversation.
1:05.6	A conversation that is important to me on a very, like, deep, deep personal level.
1:14.8	We speak with a member of the CF Canada team about the importance of a new drug that is being cycled around in the in the media
1:20.3	right now called TriCAPTA. And this drug could literally change lives in ways that words could never describe.
1:30.0	In particular, people living with cystic fibrosis who have the most common genetic
1:34.5	mutation form of the disease, which includes myself.
1:38.6	So if you listen to anything this episode, I implore you, I mean, you know, listen through to the silly story of me
1:46.6	in the hospital and my fears and phobias of needles. But if that's not doing it for you, just take a
1:52.9	moment, skip on to the 50 minute mark and listen to our conversation with Kim Steele from CF Canada
	...

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