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Epilepsy Awareness with Dr. Hussain | Group Chat News Ep. 824

Group Chat

Group Chat

News, Entrepreneurship, Business

4.81.5K Ratings

🗓️ 1 December 2023

⏱️ 58 minutes

🧾️ Download transcript

Summary

Today we have a special episode of Group Chat News with Anand and his wife Amanda in honor of Infantile Spasms Awareness Week 2023 we have Dr. Hussain on the podcast who is a pediatric epilepsy specialist who focuses on severe childhood disorders including infantile spasms, Dr Hussain has also been the Dr helping take care of Anand and Amanda's son as well as leading the charge for research and helping other families all over the world.

UCLA Infantile Spasms Research

Transcript

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0:00.0

All right, this is a very special episode. I'm going solo. What kind of solo? My wife Amanda is with me.

0:09.0

Hi guys. And, you know, it's Epilepsy Awareness Month and Infantile Awareness Week, the first week of December.

0:20.0

And for the OG group chat listeners,

0:25.8

I've described our son Maverick's journey

0:29.8

in pretty detail.

0:32.0

He was diagnosed with a very rare form of epilepsy called infantile spasms

0:36.2

at the age of six months. He's now five. He has had three brain surgeries which we're going to talk about.

0:43.0

And today's very special because his neurologist, Dr. Sean Hussein at UCLA,

0:50.0

who, by all accounts for this condition infantile spasms is the number one guy in the world

0:57.0

that we were lucky enough to get to at the age of six months right when he was diagnosed

1:02.0

and he gives a master class on the brain, epilepsy,

1:07.4

infantile spasms and the challenges and resources required to help solve this problem, help children, and help kids, you know, have a better life that are diagnosed with, you know, these rare conditions.

1:27.0

Amanda, do you have anything to add?

1:29.0

Yeah, I think, most importantly, I think that research is just so very needed.

1:38.0

He also talks about that.

1:41.0

We're extremely lucky. I know we've said this on

1:44.7

Instagram before but we just happen to be two miles away from like the guy who we've

1:58.7

triple and quadruple checked across Instagram, across friends, across our most like trusted friends who are brilliant doctors.

2:03.4

Like this is the guy who kind of like

2:06.1

is definitely leading the charge.

2:07.8

And we couldn't be more grateful that he's here

2:12.4

because if not we would be where he is to be honest like we would have moved

...

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