Ep 79 Hemophilia: A Hemorrhagic Disposition

This Podcast Will Kill You

Exactly Right and iHeartPodcasts

Health & Fitness, Science

4.8 • 17.1K Ratings

🗓️ 10 August 2021

⏱️ 93 minutes

🔗️ Recording | iTunes | RSS

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Summary

Bumps and bruises. Cuts and scrapes. Gashes and gouges. Injuries small and large are familiar to all of us, but what happens when part of our body’s innate healing ability is disrupted? What happens, for instance, when the blood just won’t stop flowing? In this episode, we explore one of the most common of these disruptions: the clotting disorder known as hemophilia. From the physiological nitty gritty on how blood clotting actually works to the long history, at times both tragic and triumphant, of the “royal disease”, we trace the story of hemophilia, ending with a hopeful look towards the future. See Privacy Policy at https://art19.com/privacy and California Privacy Notice at https://art19.com/privacy#do-not-sell-my-info.

Transcript

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0:41.9	As long as I could remember in my early childhood, I always knew that my dad had hemophilia.
0:48.5	I can specifically remember we had a whole shelf in our refrigerator full of these little white boxes
0:55.0	of factor 9, which as a kid, I didn't really know what they were, but I knew like pretty frequently
1:02.0	my dad would have to take one of those boxes into his room and he'd close the door
1:06.3	and we'd have to leave him alone for an hour.
1:08.6	And as I learned as I got a little older, he would be transfusing himself with factor 9.
1:15.3	He was a wonderful dad, but you know, because of a long history of leading into his joints,
1:24.9	he couldn't interact with us the same way, maybe other dads would.
1:28.8	He had a lot of joint pain and it was visible in his hands and his feet.
1:34.8	He would try his best, but I think I drove him crazy, wanting to be carried constantly,
1:40.3	which he could not do, and we just always wanted to play like little kids do and he'd have to
	...

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