This is exactly right.

Well, my name is Jason Geronomi.

I usually go by Jake's, it's half the syllables.

I was diagnosed with cystic fibrosis when I was nine months old because I was very

with thargic baby.

I just, there are pictures of me from that time where you can see like a kid ain't right.

I think I am alive today through a very specific set of circumstances in that when my parents

went to the doctors and were like, hey, this baby sucks.

The doctor that they went to happened to work with a CF doctor in Yale like they were

partners on cystic fibrosis.

So whereas I was a failure to thrive baby, he knew exactly why I was failure to thrive

and we were able to address that right away.

So since then, there has been a long journey and it hasn't been fun but I have been very

lucky in most of my circumstances in that there's new medicines which aren't always easy

to take but sometimes they work.

I'm able to get insurance which is a real big thing and was a real problem for me for

a lot of years.

And I'm actually doing, okay now I'm doing better now at 36 than I was at 26 which is

not how this used to go.

I was one of the first people to go into an adult CF clinic because there weren't adults

for a while and so that was weird.

I kind of missed the slide from the children's clinic but what are you going to do?

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