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Making Space with Hoda Kotb

Celine Dion on Living with Stiff Person Syndrome

Making Space with Hoda Kotb

NBC News

Health & Fitness, Mental Health, Society & Culture, Spirituality, Nbc News, Education, Motivation, Nbc, Today Show, Daily Boost, Self-improvement, Hoda, Today, Self Help, Make Space, The Today Show, Making Space, Feel Good, Making Space With Hoda Kotb, Inspiration, Hoda Kotb, Self Improvement

59.5K Ratings

🗓️ 12 June 2024

⏱️ 60 minutes

🧾️ Download transcript

Summary

Legendary singer and music icon Celine Dion sat down with Hoda Kotb for an NBC News Exclusive interview to discuss her life and health since being diagnosed with Stiff Person Syndrome, a rare autoimmune neurological disorder. Dion opens up about her health struggles, the impact SPS has had on her life and where she’s finding hope.

Transcript

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0:00.0

For as long as Saline Dion can remember this voice, her voice as she so beautifully describes it

0:15.1

has been the conductor of her life has been the conductor of her life a voice so powerful

0:20.9

so beloved and so iconic for so long so totaling more than 1,100 shows across 16 years and she's one of Billboard's top 10

0:36.6

most successful female artists of all time. But for the last several years

0:41.7

Saline has been uncharacteristically out of the spotlight, battling a terrifying disease.

0:48.0

She began quietly experiencing mysterious symptoms affecting both her body and her voice 17 years ago.

0:56.2

Finally, after more than a decade of medical evaluations, she was diagnosed with stiffiff Person Syndrome, a rare autoimmune neurological disorder.

1:07.0

Stiff Person Syndrome or SPS can cause slurred speech, double vision, painful muscle contractions, and stiffness so severe

1:17.1

patients can lose the ability to walk.

1:20.9

For Saline, SPS has been at times debilitating. Fearful she may never return to the stage or to her beloved fans,

1:29.0

Saline spent the last handful of years fighting for her life and fighting for her voice.

1:35.0

Her struggle with SPS is so beautifully captured in the documentary

1:40.0

I am Seline Dion on Amazon Prime, providing a rare glimpse into Saline's world, her

1:46.6

heartbreak, her strength, her determination to come back stronger than ever.

1:52.4

Today with intense physical therapy, vocal

1:55.1

rehabilitation, medication, and of course the love and support of her

1:59.7

family and fans, Saline says the show will go on. I had the opportunity to sit down with

2:06.4

Saline one-on-one for an NBC News exclusive interview. She opens up about

2:11.0

her health, the impact of SPS on her life, and where she's finding hope.

2:16.0

I'm Hoda Kottby. Welcome to my podcast, Making Space. So, Miss Eileen, I watched your project, and I have to tell you, like I sort of wondered

2:41.2

where you were for the last couple of years.

2:43.2

I sat and watched your project and I have to tell you I was shocked, I was surprised,

...

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