3 • 2.6K Ratings
🗓️ 23 December 2025
⏱️ 41 minutes
🧾️ Download transcript
Sarah Marshall knew from only a few months into her fourth daughter Phoebe's life that something was definitely wrong. By the time Phoebe was six, Sarah began to fear for her daughter's life. She underwent countless tests, dozens of surgeries, and was in and out of the hospital for years. Phoebe’s health was declining and no one could tell their family what was wrong. Desperate for answers and unwilling to give up on her daughter, Sarah contacted the Undiagnosed Diseases Network - a decision that would change their lives forever.
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You can find more information about the Undiagnosed Diseases Network Foundation at https://udnf.org/.
You can learn more about the Model Organisms Screening Centers (MOSC) and Dr. Hugo Bellen’s work at https://flypush.research.bcm.edu/lab/
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| 0:00.0 | Ruby. |
| 0:03.0 | She was not in her seatbelt, literally like contorting and she just clearly could not get comfortable. |
| 0:12.0 | The pain was so severe. And I remember her thanking me for taking care of her, as if she thought she was going to die. |
| 0:20.0 | You know, at that age specifically, you see doctors as, like, literally your heroes. |
| 0:24.3 | They're supposed to know everything. |
| 0:26.1 | And so when people were like, oh, I don't know, that was like, oh, what do you mean you don't know? |
| 0:32.2 | I am ashamed that I did contribute to some of that skepticism when I first met them. |
| 0:38.3 | I didn't fully understand at that point in my career how complex a brain and body can be. |
| 0:45.3 | I promise you, like on everything I love, this is real. |
| 0:49.4 | How terrifying would it be to fight an unknown enemy? |
| 0:53.6 | One you didn't recognize and didn't see coming. |
| 0:56.7 | What if that enemy was coming from within? A disease that even doctors couldn't identify. |
| 1:02.7 | Nearly half of Americans suffer from some chronic illness and many struggle for an accurate |
| 1:08.1 | diagnosis. These are their stories. |
| 1:11.9 | I'm Lauren Bright Pacheco, and this is symptomatic. |
| 1:20.2 | Sarah Marshall is without a doubt on the list for Mother of the Year. |
| 1:25.4 | Having come from a background in social work, |
| 1:27.5 | she has taught her children the value of community |
| 1:30.0 | and the importance of advocacy. |
| 1:32.4 | She is smart, intuitive, and fierce |
| 1:34.8 | in her defense of what's right. |
| 1:37.1 | She is a mother to four daughters |
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