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STORIES by Lea Thau

Adrian’s Race 2

STORIES by Lea Thau

Lea Thau

Society & Culture, Personal Journals

4.76.4K Ratings

🗓️ 30 May 2015

⏱️ 48 minutes

🧾️ Download transcript

Summary

This is the second installment in our series about Adrian Wagner, who at 25 is losing his eyesight, and who is in a race to try to locate his birth parents in time to qualify for upcoming clinical trials, which might cure his condition but require genetic testing of both parents. And that is just … Continue reading Adrian’s Race 2 →

Transcript

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0:00.0

Welcome to strangers from KCW and Radiotopia.

0:04.0

I'm Leotau.

0:05.0

In today's episode is the second installment in a series about Adrian Wagner.

0:11.0

If you haven't heard the first one, I suggest you press pause and go check it out.

0:16.0

It's called Adrian's Race.

0:18.0

In short, Adrian is 25 and suffers from Starkgarts, a form of macular degeneration,

0:25.2

which means that he's losing his eyesight. He was diagnosed when he was 12, and he was told

0:30.8

that his eyesight would get gradually worse, and that there was a distinct possibility he would

0:36.8

eventually lose all sight.

0:39.3

On the last installment, we heard the story of how Adrian has managed that so far in his life,

0:44.6

and we left him at a sort of crossroads where he was evaluating the cost-benefit

0:50.4

of pride versus humility in his attitude towards his condition. Up to that point,

0:58.0

Adrian had made very few concessions to his disease, and he took great pride in doing things the way

1:03.7

a seeing person would whenever he possibly could, to the point of taking jobs like bicycle pizza

1:10.6

delivery in New York City and construction work,

1:14.5

where he simply would not tell his employers about his vision problems and try to hide them.

1:19.6

But when you've repeatedly been hit by cars while delivering pizza,

1:24.3

or you've knocked down the wrong wall at the construction gig,

1:28.7

because the reality is that you can't see very much.

1:31.2

When does the cost of trying to act like you don't have a problem exceed the benefit of

1:37.5

not giving into it?

1:40.0

We came to that question at the very end of the last episode, and we left it open.

...

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