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slash disclosures. Hi, everyone. Welcome to the A6 and Z podcast, I'm Sonal. Today we're doing another

of our episodes in our series on healthcare challenges and opportunities. And the topic is all

about dark data, access to data, patients taking back control of their data, and what else is

possible when such data is brought to light? We therefore also discuss the

interesting nuances and a bit of history of HIPAA, as well as briefly touch on clinical trials,

the opioid crisis, and the case of Dr. Google. Is it a bad thing or even a good thing? So,

joining me for this episode, our special guest are Susanna Fox, who was previously the CTO

at the U.S. Department of Health

and Human Services, which oversees all the health and human services agencies of the United

States, from public health abroad to Medicare and Medicaid at home. She's also an advisor to

Citizen. Speaking of, we also have Anil Seti, founder and CEO of Citizen, a patient-centered platform for helping

people collect, organize, and share their own health data. And last but not least, and in fact,

he's the first voice you'll hear after mine and Susanna's. We have Vijay Pandey, general partner

on A6 and Z bio. So let's start with this whole problem of dark data. And I don't mean to make it sound sinister, but it is kind of sinister because it's hidden from

worldview.

Why are we in this position in the first place?

We're in this position because most of healthcare has grown up believing that they own

the data.

So professionals generally collect and hold the clinical data that drives a lot of clinical care.

...