A Rare Boy And His Exceptional Mother: Pontocerebellar Hypoplasia Type 3 (PCH-3)

Sickboy

CBC

Society & Culture

4.8 • 524 Ratings

🗓️ 23 August 2020

⏱️ 64 minutes

🔗️ Recording | iTunes | RSS

🧾️ Download transcript

Summary

Kristi is an emotional behavioural therapist and mom of three. She is also the caretaker to her son Ben who has a SUPER RARE brain condition called Pontocerebellar Hypoplasia Type 3. We're talking really, really, really rare. Like... only 6 people in the world with this particular type kinda rare! Kristi takes us through a day in the life of a mother caring for a child with special needs all while rocking a grade A Sickboy sense of humour. Mom of the year contender for sure.

Transcript

Click on a timestamp to play from that location

0:00.0	I'm Lisa Yuso, a digital producer at Ideas, the podcast that likes to feed your curiosity.
0:07.8	I ask my colleagues why they think you should listen.
0:11.8	Ideas can make you the smartest, most interesting guest at your next dinner party in less than 60 minutes.
0:18.7	It's got the best of a storytelling podcast
0:21.2	with the best of a great lecture.
0:23.6	You can pretty much never predict
0:25.4	where an episode will take you,
0:27.0	but you can count on every episode
0:29.0	to shift your perspective,
0:30.9	even just a little.
0:32.4	Find and follow ideas
0:33.7	wherever you get your podcasts.
0:39.9	This is a CBC podcast.
0:42.6	Welcome to Sick Boy, a podcast where we talk about what it's like to be sick.
0:46.5	This week's guest is Christy.
0:48.1	She's the mother of a child who lives with Ponte, Sarah Bellar,
0:51.5	hypoplasia type 3.
0:53.3	God, I hope I said that right.
0:55.0	Let's talk about it.
1:01.7	Okay, dokey.
1:04.0	Well, here we are.
1:05.3	We're going to dive into another conversation, not unsimilar to one that we've had. Oh, I'd say now it's probably
	...

Please login to see the full transcript.

Previous episode | Next episode

Disclaimer: The podcast and artwork embedded on this page are from CBC, and are the property of its owner and not affiliated with or endorsed by Tapesearch.

Generated transcripts are the property of CBC and are distributed freely under the Fair Use doctrine. Transcripts generated by Tapesearch are not guaranteed to be accurate.